Amyotrophic Lateral Sclerosis Association
- Assets
- $6.1m
- Revenue
- $4.6m
- Investments
- $0.0
- Employees
- 23
- Location
- St Paul, MN
- Founding
- 07/1990
- Data as of
- 01/2022
- EIN
- 41-1756085
Organization Overview
Amyotrophic Lateral Sclerosis Association, operating under the name Als Association Mnndsd Chapter, is located in St Paul, MN. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Als Association Mnndsd Chapter employed 23 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Als Association Mnndsd Chapter is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Als Association Mnndsd Chapter generated $4.6m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.5% each year. All expenses for the organization totaled $3.9m during the year ending 01/2022. While expenses have increased by 0.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CARE SERVICES - HELPING PEOPLE WITH ALS AND THEIR FAMILIES LIVE AS FULL A LIFE AS POSSIBLE THROUGH DIRECT PROGRAMS FOR PEOPLE LIVING WITH ALS (SEE SCHEDULE 0 FOR DETAIL), SUPPORT GROUPS, PHONE SUPPORT, AND REFERRALS.
RESEARCH - THE ALS ASSOCIATION, MINNESOTA/ NORTH DAKOTA/SOUTH DAKOTA CHAPTER IS AN AFFILIATE OF THE NATIONAL ALS ASSOCIATION. EACH YEAR SINCE ITS FOUNDING IN 1985, THE NATIONAL ALS ASSOCIATION HAS INCREASED ITS INVESTMENT IN RESEARCH GRANTS. SINCE THE ICE BUCKET CHALLENGE, THE ALS ASSOCIATION HAS INVESTED $122 MILLION IN THE QUEST TO UNLOCK THE MYSTERIES OF ALS. IN THE PAST 25 YEARS THE MINNESOTA /NORTH DAKOTA /SOUTH DAKOTA CHAPTER HAS HELPED RAISE MORE THAN $5.0 MILLION FOR ALS RESEARCH.THE ALS ASSOCIATION FUNDS MORE ALS RESEARCH THAN ANY OTHER ORGANIZATION AND ITS RESEARCH ENTERPRISE IS RECOGNIZED IN THE ALS COMMUNITY FOR ITS SCOPE AND DIVERSITY. CURRENTLY, THE ASSOCIATION IS FUNDING 162 ACTIVE PROJECTS GLOBALLY. PROJECTS ARE MILESTONE DRIVEN, WHICH ENABLES THE ASSOCIATION TO REDIRECT DOLLARS WHEN THE SCIENCE DEMONSTRATES THAT ONE APPROACH IS NOT FEASIBLE, AND ANOTHER IS MORE PROMISING.
PUBLIC AWARENESS - EDUCATE AND INFORM THE PUBLIC ABOUT THE NATURE OF ALS THROUGH ADVOCACY, NEWSLETTERS, SOCIAL MEDIA AND EVENTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jennifer Hjelle Executive Director | Officer | 40 | $145,078 |
Marrianne Keuhn Vice President Care Servic | 40 | $120,508 | |
Ryan Stauff Vice President Development | 40 | $117,841 | |
Jordan Sing Secretary | OfficerTrustee | 2 | $0 |
Clay Ahrens Vice President | OfficerTrustee | 2 | $0 |
John Orner Treasurer | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,034,977 |
| Related organizations | $0 |
| Government grants | $285,775 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,341,572 |
| Noncash contributions included in lines 1a–1f | $1,028,832 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,662,324 |
| Total Program Service Revenue | $0 |
| Investment income | $63,341 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$83,084 |
| Net Income from Fundraising Events | -$78,493 |
| Net Income from Gaming Activities | $8,055 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $4,572,143 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $156,204 |
| Compensation of current officers, directors, key employees. | $15,621 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,189,821 |
| Pension plan accruals and contributions | $34,814 |
| Other employee benefits | $115,467 |
| Payroll taxes | $106,532 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $103,921 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $26,271 |
| Fees for services: Other | $0 |
| Advertising and promotion | $165 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $275,106 |
| Travel | $4,261 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $360,203 |
| Depreciation, depletion, and amortization | $747,064 |
| Insurance | $0 |
| All other expenses | $200,126 |
| Total functional expenses | $3,921,624 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $276,007 |
| Savings and temporary cash investments | $1,043,908 |
| Pledges and grants receivable | $733 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $33,249 |
| Net Land, buildings, and equipment | $1,730,943 |
| Investments—publicly traded securities | $2,999,794 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $19,518 |
| Total assets | $6,104,152 |
| Accounts payable and accrued expenses | $132,278 |
| Grants payable | $0 |
| Deferred revenue | $57,700 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $550,137 |
| Total liabilities | $740,115 |
| Net assets without donor restrictions | $4,902,841 |
| Net assets with donor restrictions | $461,196 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $6,104,152 |
Grants Recieved
Over the last fiscal year, we have identified 11 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $394,526.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $103,930 |
Saint Paul & Minnesota Foundation Saint Paul, MN PURPOSE: MULTIPLE GRANTS FOR MULTIPLE PURPOSES | $67,125 |
The Blackbaud Giving Fund Charleston, SC PURPOSE: GENERAL SUPPORT | $56,825 |
The Blackbaud Giving Fund Charleston, SC PURPOSE: GENERAL SUPPORT | $56,825 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $54,760 |
American Endowment Foundation Hudson, OH PURPOSE: HEALTH, GENERAL | $31,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Amyotrophic Lateral Sclerosis Association St Paul, MN | $6,104,152 | $4,572,143 |
Broadscope Disability Services Inc Greenfield, WI | $1,648,437 | $3,909,521 |
Never Surrender Inc Hermantown, MN | $900,085 | $1,724,534 |
United Council For Neurologic Subspecialties Minneapolis, MN | $2,634,255 | $1,432,142 |
American Academy For Cerebral Palsy And Development Medicine Milwaukee, WI | $3,159,683 | $1,129,067 |
American Society Of Neuroimaging Inc Roseville, MN | $217,349 | $577,510 |
Peripheral Nerve Society Roseville, MN | $6,858,410 | $1,135,903 |
Pelvic Pain Society Burnsville, MN | $410,246 | $235,543 |
Walker Area Food Shelf Inc Walker, MN | $435,535 | $0 |
Kurt B Seydow Dystonia Foundation Excelsior, MN | $19,208 | $0 |
Als Worldwide Milwaukee, WI | $46,798 | $118,374 |
Spine Institute For Quality Spine Iq Inc Davenport, IA | $19,272 | $0 |