Foundation For Sarcoidosis Research
- Assets
- $4.9m
- Revenue
- $1.7m
- Investments
- $0.0
- Employees
- 14
- Location
- Chicago, IL
- Founding
- 02/2012
- Data as of
- 12/2022
- EIN
- 36-4378232
Organization Overview
Foundation For Sarcoidosis Research is located in Chicago, IL. The organization was established in 2012. According to its NTEE Classification (T31) the organization is classified as: Community Foundations, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. As of 12/2022, Foundation For Sarcoidosis Research employed 14 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Foundation For Sarcoidosis Research is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Foundation For Sarcoidosis Research generated $1.7m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 7.9% each year. All expenses for the organization totaled $2.0m during the year ending 12/2022. While expenses have increased by 8.6% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Foundation For Sarcoidosis Research has awarded 84 individual grants totaling $3,440,905. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $6 MILLION IN SARCOIDOSIS-SPECIFIC RESEARCH EFFORTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION APPROACHES THEIR MISSION OF FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH FOLLOWING MAJOR PROGRAM AREAS: PATIENT OUTREACH AND EDUCATION PROGRAMS, PHYSICIAN OUTREACH PROGRAM AND SCIENTIFIC RESEARCH AGENDA. IN THESE PROGRAMS, VARIOUS RESOURCES AND EDUCATION ARE PROVIDING TO THE PATIENT AND THEIR LOVED ONES, NAVIGATION AND NETWORK ARE BUILT UP TO CONNECT PATIENTS, PHYSICIANS AND PEERS OF BOTH COMMUNITIES.
RESEARCH - FSR'S SMALL GRANT PROGRAM FOCUSES ON AWARDING FUNDS TO NEW OR EARLY STAGE RESEARCH ON SARCOIDOSIS. FSR'S CLINICAL STUDIES NETWORK(CSN) AND SARCONNECT PROGRAMS CONTINUED TO ENGAGE AND PARTNER WITH PHARMACEUTICAL COMPANIES THROUGH PATIENT OUTREACH AND RECRUITMENT FOR LARGE MULTI- CENTER TRIALS. BOTH PROGRAMS HELP CARRY OUT MULTIPLE STUDIES WITH FOCUS IN CARDIAC AND PULMONARY SARCOIDOSIS. FSR CONTINUED GROWING THE PATIENT REGISTRY AND MADE SIGNIFICANT PROGRESS ON THE SCOUTENDPOINTS PROJECT, IN ADDITION TO PROVIDING SERVICES AND SUPPORT TO ADVANCE SARCOIDOSIS RESEARCH AND THE MISSION OF THE ORGANIZATION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Mary E Mcgowan CEO | Officer | 40 | $246,000 |
Louise M Perkins PHD President | OfficerTrustee | 10 | $0 |
Craig Lipset Vice President | OfficerTrustee | 5 | $0 |
Mary Cobb Secretary | OfficerTrustee | 5 | $0 |
Michael Kaplan Treasurer | Trustee | 5 | $0 |
Yvette Cozier Dsc MPH Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,291,209 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,291,209 |
| Total Program Service Revenue | $341,425 |
| Investment income | $119,287 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$79,697 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,673,599 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $204,250 |
| Grants and other assistance to domestic individuals. | $150,500 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $246,000 |
| Compensation of current officers, directors, key employees. | $20,963 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $733,472 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $70,172 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $68,792 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $24,943 |
| Fees for services: Other | $0 |
| Advertising and promotion | $10,418 |
| Office expenses | $13,196 |
| Information technology | $64,667 |
| Royalties | $0 |
| Occupancy | $55,671 |
| Travel | $28,710 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $50,272 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $6,041 |
| Insurance | $5,637 |
| All other expenses | $42,237 |
| Total functional expenses | $2,027,945 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $618,781 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $382,943 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $70,934 |
| Net Land, buildings, and equipment | $1,001 |
| Investments—publicly traded securities | $3,856,195 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $4,929,854 |
| Accounts payable and accrued expenses | $209,856 |
| Grants payable | $175,000 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $384,856 |
| Net assets without donor restrictions | $3,345,460 |
| Net assets with donor restrictions | $1,199,538 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,929,854 |
Grants Awarded
Over the last fiscal year, Foundation For Sarcoidosis Research has awarded $352,100 in support to 11 organizations.
| Grant Recipient | Amount |
|---|---|
ALBANY MEDICAL COLLEGE PURPOSE: RESEARCH | $8,300 |
AMERICAN THORACIC SOCIETY PURPOSE: RESEARCH | $13,500 |
CLEVELAND CLINIC PURPOSE: RESEARCH | $12,800 |
NATIONAL JEWISH HEALTH PURPOSE: RESEARCH | $11,400 |
NATIONAL JEWISH HOSPITAL PURPOSE: FELLOWSHIP | $150,000 |
NORTHWESTERN UNIVERSITY PURPOSE: RESEARCH | $14,900 |