Northern Ohio Hemophilia Foundation Inc

THE NORTHERN OHIO HEMOPHILIA FOUNDATION, INC. (NOHF) IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR PEOPLE WITH GENETIC BLEEDING DISORDERS AND THEIR FAMILIES, THROUGH ADVOCACY, EDUCATION, RESEARCH AND OTHER CONSTITUENCY SERVICES.

THE PROGRAMS AND SERVICES OFFERED BY THE ORGANIZATION INCLUDE:-DADS IN ACTION: A PROGRAM DESIGNED BY HFA FOR MALE CAREGIVERS OF CHILDREN WITH BLEEDING DISORDERS. THE PROGRAM ENCOURAGES FATHERS TO TAKE AN ACTIVE ROLE IN THEIR CHILDS LIFE AND PROVIDES INFORMATION, SUPPORT AND MENTORINGFOR THEM.-BLOOD BROTHERHOOD: BLOOD BROTHERHOOD IS A NATIONAL PROGRAM DESIGNED BY HFA FOR ADULT MEN, DIAGNOSED AND LIVING WITH BLEEDING DISORDERS. IT IS DESIGNED TO BE A MULTI-AVENUE OUTREACH, TO PROVIDE EDUCATION AND SUPPORT, PROMOTEGOOD HEALTH, AND ESTABLISH A SENSE OF COMMUNITY FOR ADULT MEN.

-WOMENS TASK FORCE: THIS PROJECT PROVIDES INFORMATION AND PROGRAMING FORWOMEN WITH BLEEDING DISORDERS. THE PRIMARY FOCUS IS TO PROVIDE OUTREACH TOAID IN EARLIER DIAGNOSIS.WE PRIMARILY SERVE THE BLEEDING DISORDERS COMMUNITY IN THE 24 COUNTIES INNORTHEAST OHIO, ALTHOUGH OUR DENTAL PROGRAM AND ADVOCACY PROGRAM SERVES THEENTIRE STATE.WE HAVE MANY STRONG RELATIONSHIPS IN THE BLEEDING DISORDERS COMMUNITY. WEARE A CHARTER MEMBER OF THE NATIONAL HEMOPHILIA FOUNDATION (NHF) AND AMEMBER ORGANIZATION OF THE HEMOPHILIA FEDERATION OF AMERICA (HFA). STAFFATTENDS CONFERENCES THROUGH BOTH ORGANIZATIONS TO KEEP UPDATED ON NEWTREATMENTS, MEDICATION AND EDUCATIONAL ADVANCEMENTS. WE ARE ALSO A MEMBEROF THE OHIO BLEEDING DISORDER COUNCIL (OBDC). THIS STATEWIDE GROUP PROVIDESINFORMATION ABOUT ADVOCACY WITHIN THE STATE AND NATIONALLY. NOHFPARTICIPATES IN WASHINGTON DAYS AND STATEHOUSE DAY TO GIVE OUR MEMBERS THECHANCE TO MEET WITH STATE AND NATIONAL OFFICIALS.

-YOUTH GOLF PROGRAM: THIS PROGRAM IS AVAILABLE TO CHILDREN AGES 10 TO 18 TOLEARN THE GAME OF GOLF. THE PROGRAM RUNS WEEKLY FOR 8 WEEKS, AT A CENTRALLYLOCATED COURSE, DURING THE SUMMER TO TEACH NEW SKILLS AND ALSO PROVIDESWEEKLY EDUCATIONAL PROGRAMS RELATING TO THEIR BLEEDING DISORDERS. SIBLINGSARE ALSO WELCOME TO ATTEND THIS PROGRAM.-SWIM PROGRAM: THIS PROGRAM PROVIDES 8 WEEKS OF SWIM CLASSES AT THREEINDOOR POOLS, INCLUDING YMCA AND COMMUNITY POOLS, IN NORTHEAST OHIO. THEPROGRAM IS OPEN TO ALL AGES TO LEARN HOW TO SWIM OR TO INCREASE THEIRSWIMMING SKILLS. THE PROGRAM RUNS FROM JANUARY THROUGH MARCH.-VARIOUS WELLNESS INITIATIVES: WE OFFER VARIOUS WELLNESS INITIATIVESTHROUGHOUT THE YEAR INCLUDING YOGA, RUN TRAINING PROGRAMS AND GUIDEDIMAGERY.

-STEPS FOR LIVING: A PROGRAM FOR NEWLY DIAGNOSED FAMILIES BASED ON THEMODEL PROVIDED BY NHF. IT PROVIDES EDUCATIONAL QUARTERLY MEETINGS ANDSUPPORT FOR PARENTS AND OTHER FAMILY MEMBERS DURING THE EARLY COPING YEARSTHROUGH FAMILY-TO-FAMILY SUPPORT AND MENTORING.-COUNSELING: UP TO $500 PER FAMILY PER YEAR FOR INDIVIDUAL OR FAMILYCOUNSELING.-CAMP SCHOLARSHIPS: WE SEND CHILDREN TO HEMOPHILIA-GEARED CAMPS AND PROVIDEEITHER TRANSPORTATION OR MILEAGE REIMBURSEMENT.-EDUCATIONAL SCHOLARSHIPS: WE PROVIDE UP TO $500 EACH YEAR FOR PEOPLE WITHBLEEDING DISORDERS AND THEIR CAREGIVERS FOR TUITION, TUTORING OREDUCATIONAL SUPPLIES, SUCH AS BOOKS.-MEDICALERT: WE PROVIDE EMBLEMS AND YEARLY MEMBERSHIP TO CHILDREN ANDADULTS WITH BLEEDING DISORDERS-EMERGENCY FINANCIAL ASSISTANCE: ELIGIBLE FAMILIES MAY REQUEST $500 PERYEAR FOR ASSISTANCE IF THEIR FINANCIAL DURESS IS DIRECTLY RELATED TO THEIRBLEEDING DISORDER.