Familial Dysautonomia Now Foundation
- Assets
- $882.1k
- Revenue
- $293.5k
- Investments
- $0.0
- Employees
- 0
- Location
- Buffalo Grove, IL
- Founding
- 04/2009
- Data as of
- 07/2022
- EIN
- 26-3531031
Organization Overview
Familial Dysautonomia Now Foundation is located in Buffalo Grove, IL. The organization was established in 2009. According to its NTEE Classification (H11) the organization is classified as: Single Organization Support, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Familial Dysautonomia Now Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2022, Familial Dysautonomia Now Foundation generated $293.5k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.4% each year. All expenses for the organization totaled $226.3k during the year ending 07/2022. While expenses have increased by 3.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO DISCOVER NEW TREATMENTS AND CURES FOR PATIENTS WITH FAMILIAL DYSAUTONOMIA, A RARE, FATAL, GENETIC DISEASE PRESENT AT BIRTH
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO DISCOVER NEW TREATMENTS AND CURES FOR PATIENTS WITH FAMILIAL DYSAUTONOMIA, A RARE, FATAL, GENETIC NEUROLOGICAL DISEASE PRESENT AT BIRTH
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Ken Slaw PHD Vice President | OfficerTrustee | 4 | $0 |
Ann Slaw JD President | OfficerTrustee | 40 | $0 |
Andrea Greenfield Treasurer | OfficerTrustee | 4 | $0 |
Carol Alterman RN Fl Regional Representative | Trustee | 1 | $0 |
Pat White Advisory Board | Trustee | 1 | $0 |
Tara D Schimmel Ms Ed Ny Regional Representative | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $184,296 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $99,335 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $283,631 |
| Total Program Service Revenue | $0 |
| Investment income | $1,633 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $8,198 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $293,462 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $177,012 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $31,827 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $12,050 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $805 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,229 |
| All other expenses | $3,419 |
| Total functional expenses | $226,342 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $12,776 |
| Savings and temporary cash investments | $200,073 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $669,289 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $882,138 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $882,138 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $882,138 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that Familial Dysautonomia Now Foundation has recieved totaling $65,812.
| Awarding Organization | Amount |
|---|---|
Foundation For Jewish Philanthropies Getzville, NY PURPOSE: GENERAL PURPOSES | $25,000 |
Jewish Communal Fund New York, NY PURPOSE: GENERAL SUPPORT | $21,134 |
Slomo And Cindy Silvian Foundation Inc Melville, NY PURPOSE: MEDICAL RESEARCH | $17,500 |
Jp Morgan Chase Foundation New York, NY PURPOSE: GENERAL OPERATING SUPPORT | $2,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $178 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Stanley Manne Childrens Research Institute Chicago, IL | $169,123,650 | $39,027,696 |
Morgridge Institute Foundation Inc Madison, WI | $491,309,219 | $74,942,129 |
Walther Cancer Foundation Inc Indianapolis, IN | $153,573,547 | $10,375,494 |
Area Ambulance Authority Cedar Rapids, IA | $10,871,659 | $8,115,144 |
Emily G Plumb Charitable Trust 02-40073 Chicago, IL | $40,196,560 | $2,064,076 |
Allsup Charitable Services Inc Belleville, IL | $56,195 | $1,271,531 |
West Side Institute For Science And Education Chicago, IL | $0 | $965,979 |
International Clinical Cytometry Society Glenview, IL | $947,003 | $624,954 |
National Niemann-Pick Disease Foundation Fort Atkinson, WI | $850,802 | $499,229 |
American Board Of Medical Specialties Research & Education F Chicago, IL | $305,881 | $0 |
Design Industries Foundation Fighting Aids-Chicago Inc Chicago, IL | $1,326,624 | $272,741 |
Familial Dysautonomia Now Foundation Buffalo Grove, IL | $882,138 | $293,462 |