New York City Hemophilia Chapter
- Assets
- $477.6k
- Revenue
- $590.3k
- Investments
- $0.0
- Employees
- 4
- Location
- New York, NY
- Founding
- 04/2009
- Data as of
- 12/2020
- EIN
- 26-1915425
Organization Overview
New York City Hemophilia Chapter is located in New York, NY. The organization was established in 2009. According to its NTEE Classification (G19) the organization is classified as: Support N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, New York City Hemophilia Chapter employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. New York City Hemophilia Chapter is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, New York City Hemophilia Chapter generated $590.3k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 5.6% each year. All expenses for the organization totaled $526.2k during the year ending 12/2020. While expenses have increased by 7.2% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGNANIZATION CONDUCTS A VARIETY OF ACTIVITIES DESIGNED TO EDUCATE, INFORM AND EXPAND RESEARCH AND KNOWLEDGE, AND GENERALLY IMPROVE THE WELL BEING OF PEOPLE AFFECTED BY BLEEDING DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUSTIDE OF THE COMMUNITY. THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUTSIDE OF THE COMMUNITY. IT ATTRACTS THOUSANDS OF PARTICIPANTS,GARNERS MEDIA ATTENTION, AND RAISES CRITICAL FUNDS FOR PROGRAMS AND SERVICES. NYCHC EDUCATION DAY BRINGS PEOPLE AFFECTED BY BLEEDING DISORDERS TOGETHER FOR CRITICAL LEARNING, SHARING, AND SUPPORT. THE DAY ATTRACTS MORE THAN 300 AFFECTED INDIVIDUALS. SESSION TOPICS INCLUDE MEDICATION ADHERENCE, DEALING WITH INHIBITORS (IMMUNE RESPONSE TO MEDICATION), ISSUES FACING WOMEN WITH BLEEDING DISORDERS, ACCESS TO CARE INCLUDING INSURANCE, LIFE TRANSITION ISSUES FOR AFFECTED INDIVIDUALS AND CARETAKERS, AND MANY MORE. THIS EDUCATION LEADS TO BETTER ACCESS TO CARE, BETTER SELF-CARE, AND IMPROVED OUTCOMES. NYCHC ALSO PROVIDES PROGRAMS AND SERVICES DESIGNED TO PROVIDE SUPPORT TO SPECIFIC POPULATIONS WITH THE COMMUNITY. FOR EXAMPLE, DAD IN ACTION IS GEARED TOWARDS DADS IN THE COMMUNITY WHO EITHER HAVE A BLEEDING DISORDER OR HAVE CHILDREN WITH A BLEEDING DISORDER; CONNECTIONS IS GEARED TOWARDS FAMILIES WHO ARE EITHER NEW TO HEMOPHILIA, NEW TO BLEEDING DISORDERS, OR BOTH.
THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUSTIDE OF THE COMMUNITY. THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUTSIDE OF THE COMMUNITY. IT ATTRACTS THOUSANDS OF PARTICIPANTS,GARNERS MEDIA ATTENTION, AND RAISES CRITICAL FUNDS FOR PROGRAMS AND SERVICES. NYCHC EDUCATION DAY BRINGS PEOPLE AFFECTED BY BLEEDING DISORDERS TOGETHER FOR CRITICAL LEARNING, SHARING, AND SUPPORT. THE DAY ATTRACTS MORE THAN 300 AFFECTED INDIVIDUALS. SESSION TOPICS INCLUDE MEDICATION ADHERENCE, DEALING WITH INHIBITORS (IMMUNE RESPONSE TO MEDICATION), ISSUES FACING WOMEN WITH BLEEDING DISORDERS, ACCESS TO CARE INCLUDING INSURANCE, LIFE TRANSISITON ISSUES FOR AFFECTED INDIVIDUALS AND CARETAKERS AND MANY MORE. THIS EDUCATION LEADS TO BETTER ACCESS TO CARE, BETTER SELF-CARE AND IMPROVED OUTCOMES. NYCHC ALSO PROVIDES PROGRAMS AND SERVICES DESIGNED TO PROVIDE SUPPORT TO SPECIFIC POPULATIONS WITHIN THE COMMUNITY. FOR EXAMPLE, DAD IN ACTION IS GEARED TOWARDS DADS IN THE COMMUNITY WHO EITHER HAVE A BLEEDING DISORDER OR HAVE CHILDREN WITH A BLEEDING DISORDER; CONNECTIONS IS GEARED TOWARDS FAMILIES WHO ARE EITHER NEW TO HEMOPHILIA, NEW TO BLEEDING DISORDERS OR BOTH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jeremy Griffin Executive Di | $150,000 | ||
Erin Cirelli Vice Preside | Officer | $0 | |
Elizabeth Cedeno Treasurer | Officer | $0 | |
Julia Golier Secretary | Officer | $0 | |
Dr Regina Legere-Buccellato President | Officer | $0 | |
Brian Dixon Board Member | Trustee | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $77,600 |
| All other contributions, gifts, grants, and similar amounts not included above | $153,969 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $231,569 |
| Total Program Service Revenue | $166,183 |
| Investment income | $133 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $192,463 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $590,348 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $20,720 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $340,356 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $35,173 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $24,651 |
| Fees for services: Lobbying | $11,454 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $6,301 |
| Advertising and promotion | $3,141 |
| Office expenses | $21,075 |
| Information technology | $1,697 |
| Royalties | $0 |
| Occupancy | $15,793 |
| Travel | $83 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $6,283 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $7,916 |
| All other expenses | $0 |
| Total functional expenses | $526,157 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $442,706 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $32,640 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,539 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $720 |
| Total assets | $477,605 |
| Accounts payable and accrued expenses | $21,739 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $5,114 |
| Total liabilities | $26,853 |
| Net assets without donor restrictions | $450,752 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $477,605 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that New York City Hemophilia Chapter has recieved totaling $84,683.
| Awarding Organization | Amount |
|---|---|
Good360 Alexandria, VA PURPOSE: TO ASSIST THOSE IN NEED. | $64,410 |
The National Hemophilia Foundation New York, NY PURPOSE: STATE BASED ADVOCACY COALITION GRANT & UNITED WALK GRANT | $12,000 |
Hemophilia Alliance Foundation Lansdale, PA PURPOSE: PROMOTE HEMOPHILIA | $8,000 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $100 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $100 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $73 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Upper Room Aids Ministry Inc Adult Day Health Care Center New York, NY | $12,030,689 | $18,432,738 |
American Board Of Surgery Philadelphia, PA | $21,861,493 | $12,534,091 |
Hemophilia Alliance Group Purchasing Organization Inc Lansdale, PA | $7,827,935 | $7,535,975 |
Unite For Her West Chester, PA | $2,837,331 | $3,562,552 |
Primary Care Services Meadville, PA | $221,457 | $2,059,942 |
Fibrolamellar Cancer Foundation Greenwich, CT | $7,664,472 | $4,041,093 |
Relapsing Polychondritis Awareness And Support Foundation New York, NY | $1,026,239 | $1,006,610 |
Corporate Angel Network Inc White Plains, NY | $5,017,571 | $1,458,856 |
Cancer Bridges Pittsburgh, PA | $5,131,335 | $886,281 |
Frances Foundation For Kids Fighting Cancer Inc Holmdel, NJ | $128,224 | $468,429 |
New York City Hemophilia Chapter New York, NY | $477,605 | $590,348 |
Cedars Inc Havertown, PA | $339,532 | $424,269 |