Cure Tay-Sachs Foundation
- Assets
- $2.3m
- Revenue
- $448.2k
- Investments
- $2.2m
- Employees
- 0
- Location
- Phoenix, AZ
- Founding
- 08/2007
- Data as of
- 12/2022
- EIN
- 26-0256621
Organization Overview
Cure Tay-Sachs Foundation is located in Phoenix, AZ. The organization was established in 2007. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Tay-Sachs Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Cure Tay-Sachs Foundation generated $448.2k in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 2.5% each year. All expenses for the organization totaled $238.2k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Cheryl Babo Director | Trustee | 2 | $0 |
Nicki Luce Director | Trustee | 2 | $0 |
Laurie Ten Berg Director | Trustee | 2 | $0 |
Terry Karl ESQ Director | Trustee | 2 | $0 |
Robbie Sandoval Director | Trustee | 2 | $0 |
Brian Plick Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $395,604 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $395,604 |
| Total Program Service Revenue | $0 |
| Investment income | $57,623 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $25,230 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$30,255 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $448,202 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $146,398 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $48,000 |
| Compensation of current officers, directors, key employees. | $24,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $1,450 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $20,122 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $6,345 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,519 |
| All other expenses | $0 |
| Total functional expenses | $238,193 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $79,353 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $2,207,757 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,287,110 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $2,287,110 |
| Total liabilities and net assets/fund balances | $2,287,110 |
Grants Awarded
Over the last fiscal year, Cure Tay-Sachs Foundation has awarded $203,193 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
BOSTON COLLEGE PURPOSE: TO FUND RESEARCH TO CURE TAY-SACHS | $20,000 |
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL PURPOSE: TO FUND RESEARCH TO CURE TAY-SACHS | $108,872 |
UNIVERSITY OF CALIFORNIA DAVIS PURPOSE: TO FUND STEM CELL RESEARCH TO CURE TAY-SACHS | $74,321 |