Cure Tay-Sachs Foundation
- Assets
- $2.1m
- Revenue
- $192.7k
- Investments
- $1.9m
- Employees
- 0
- Location
- Phoenix, AZ
- Founding
- 08/2007
- Data as of
- 12/2021
- EIN
- 26-0256621
Organization Overview
Cure Tay-Sachs Foundation is located in Phoenix, AZ. The organization was established in 2007. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Tay-Sachs Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cure Tay-Sachs Foundation generated $192.7k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (8.8%) each year. All expenses for the organization totaled $225.7k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (8.0%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Rick Karl President | Officer | 20 | $48,000 |
Bruce Steiger Treasurer | Officer | 8 | $0 |
Laurie Ten Berg Director | Trustee | 2 | $0 |
Terry Karl ESQ Director | Trustee | 2 | $0 |
Deepa Kodali Director | Trustee | 2 | $0 |
Holly Mcdonald Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $103,455 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $103,455 |
| Total Program Service Revenue | $0 |
| Investment income | $59,814 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $29,449 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $192,718 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $146,398 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $48,000 |
| Compensation of current officers, directors, key employees. | $24,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,450 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $19,099 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,519 |
| All other expenses | $0 |
| Total functional expenses | $225,746 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $199,453 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $1,877,648 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,077,101 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $2,077,101 |
| Total liabilities and net assets/fund balances | $2,077,101 |
Grants Awarded
Over the last fiscal year, Cure Tay-Sachs Foundation has awarded $203,193 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL PURPOSE: TO FUND RESEARCH TO CURE TAY-SACHS | $108,872 |
Davis, CA PURPOSE: TO FUND STEM CELL RESEARCH TO CURE TAY-SACHS | $74,321 |
Chestnut Hill, MA PURPOSE: TO FUND RESEARCH TO CURE TAY-SACHS | $20,000 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Cure Tay-Sachs Foundation has recieved totaling $1,046.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $706 |
Shell Oil Company Foundation Houston, TX PURPOSE: MG | $100 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $60 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $60 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $60 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $40 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Wellcome Leap Inc Culver City, CA | $553,318,259 | $346,259,833 |
Wings For Life Usa - Spinal Cord Research Foundation Inc Santa Monica, CA | $6,609,538 | $4,978,629 |
Foundation For Research Carson City, NV | $164,068,419 | $4,402,154 |
Runx1 Foundation Santa Barbara, CA | $3,085,064 | $5,336,089 |
Psfc Santa Cruz, CA | $8,888,871 | $6,472,995 |
Morgan Adams Foundation Denver, CO | $599,169 | $1,762,141 |
Kure It Inc Irvine, CA | $825,809 | $1,330,675 |
Harold Pump Foundation Sherman Oaks, CA | $580,879 | $1,396,694 |
The Weil Foundation Tucson, AZ | $2,417,436 | $1,895,509 |
Cancer Awareness Through Research And Education Association Carefree, AZ | $148,453 | $969,135 |
Shoot For A Cure North Hollywood, CA | $399,457 | $878,758 |
Arrowhead Regional Medical Center Foundation Colton, CA | $2,669,831 | $937,166 |