Living Beyond Breast Cancer
- Assets
- $18.8m
- Revenue
- $5.7m
- Investments
- $0.0
- Employees
- 31
- Location
- Bala Cynwyd, PA
- Founding
- 04/1994
- Data as of
- 12/2021
- EIN
- 23-2734689
Organization Overview
Living Beyond Breast Cancer is located in Bala Cynwyd, PA. The organization was established in 1994. According to its NTEE Classification (E80) the organization is classified as: Health (General & Financing), under the broad grouping of Health Care and related organizations. As of 12/2021, Living Beyond Breast Cancer employed 31 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Living Beyond Breast Cancer is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Living Beyond Breast Cancer generated $5.7m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.3% each year. All expenses for the organization totaled $4.2m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO CONNECT PEOPLE WITH TRUSTED BREAST CANCER INFORMATION AND A COMMUNITY OF SUPPORT
Describe the Organization's Program Activity:
Part 3 - Line 4a
EDUCATIONAL AND STORYTELLING WEBSITE:LBBC.ORG: THE WEBSITE GATHERS AND PRESENTS MEDICAL AND PSYCHOSOCIAL INFORMATION THAT PEOPLE RELY ON TO HELP THEM UNDERSTAND THEIR TYPE OF BREAST CANCER, THE IMPACT IT HAS ON THEIR LIVES AND INTRODUCES THEM TO THE COMMUNITY THAT IS AVAILABLE TO SUPPORT THEM. THE WEBSITE CONTAINS A RICH ARRAY OF RESOURCES FROM WRITTEN CONTENT TO VIDEOS, TO NEWS AND VIEWS ABOUT BREAST CANCER. THE WEBSITE REFLECTS LBBC'S COMMITMENT TO PROVIDING INFORMATION AND SUPPORT TO ALL PEOPLE IMPACTED BY BREAST CANCER, THOSE DIAGNOSED, THEIR FAMILIES AND CAREGIVERS AS WELL AS HEALTHCARE PROVIDERS.BLOGS: LBBC KNOWS THERE IS POWER IN TELLING PERSONAL STORIES AND SHARING EXPERIENCES, FOR BOTH THE WRITER AND THE READER. THE LBBC BLOG FEATURES STORIES OF WOMEN AND MEN IMPACTED BY BREAST CANCER AS WELL AS THOSE OF FAMILY MEMBERS, FRIENDS, AND CAREGIVERS. THESE FIRST-PERSON STORIES, IN PRINT AND BY VIDEO, SHARE THE LIVED EXPERIENCE OF BREAST CANCER.
EDUCATIONAL PROGRAMS:CONFERENCES, SUMMITS, AND WEBINARS: VIRTUALLY DELIVERED EDUCATIONAL PROGRAMS PROVIDE INFORMATION IN AN ARRAY OF FORMATS - FROM PLENARY SESSIONS TO INTERACTIVE WORKSHOPS LED BY BREAST CANCER EXPERTS, THESE LIVE DIGITAL PROGRAMS HELP PARTICIPANTS MAKE INFORMED DECISION ABOUT THEIR CARE AND CONNECT WITH OTHERS. KNOWLEDGE IS POWER: UNDERSTANDING THE BLACK BREAST CANCER EXPERIENCETHIS ANNUAL EDUCATIONAL SERIES FEATURES CONNECTED VIRTUAL WORKSHOPS WORKS DESIGNED BY A BLACK BREAST CANCER ADVISORY COUNCIL. THIS PROGRAM SEEKS TO REDUCE HEALTHCARE DISPARITIES THROUGH EDUCATION AND SUPPORTIVE INFORMATION.HEAR MY VOICE OUTREACH AND ADVOCACY PROGRAM: EVERY YEAR LBBC TRAINS A NEW HEAR MY VOICE CLASS COMPRISED OF WOMEN AND MEN LIVING WITH METASTATIC BREAST CANCER TO BE ADVOCATES IN THEIR COMMUNITIES, AS WELL AS ON A NATIONAL LEVEL AND TO PROVIDE PEER SUPPORT TO OTHERS LIVING WITH METASTATIC BREAST CANCER.YOUNG WOMEN'S INITIATIVE: LBBC IS IN THE THIRD YEAR OF A FIVE-YEAR COOPERATIVE AGREEMENT WITH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THIS FUNDING IS USED TO PROVIDE DEDICATED PROGRAMS AND SERVICES FOR WOMEN UNDER THE AGE OF 45 DIAGNOSED WITH BREAST CANCER. PROGRAMS INCLUDE SURVIVORSHIP SERIES FOR YOUNG WOMEN, YOUNG ADVOCATE PROGRAM AND PARENTING RESOURCES.
FINANCIAL ASSITANCE:LBBC FUND: ONE-TIME GRANTS OF UP TO $1,250 FOR WOMEN IN ACTIVE TREATMENT FOR BREAST CANCER WHO ARE FACING FINANCIAL HARDSHIPS. THESE GRANTS ARE AVAILABLE TO ANYONE LIVING IN THE UNITED STATES.
OTHER PROGRAM SERVICES:BREAST CANCER HELPLINE: STAFFED BY VOLUNTEERS WHO HAVE A PERSONAL HISTORY OF BREAST CANCER, THIS SERVICE PROVIDES PEER SUPPORT AND PRACTICAL INFORMATION THROUGH A CONFIDENTIAL EXCHANGE.CLOSED FACEBOOK COMMUNITIES: LBBC HOSTS CLOSED FACEBOOK COMMUNITIES TO ALLOW THE BREAST CANCER COMMUNITY TO EASILY ACCESS PEER SUPPORT. THERE ARE NOW THREE CLOSED COMMUNITIES FOR THESE GROUPS: YOUNG WOMEN, ALL AGES/ALL STAGES, AND HIGH RISK FOR BREAST CANCER.HEALTHCARE PROVIDER EDUCATION AND OUTREACH: LBBC OFFERS WEBINARS AND RESOURCES DIRECTLY TO HEALTHCARE PROVIDERS ON SPECIFIC TOPICS TO HELP THEM BETTER SUPPORT THEIR PATIENTS.GUIDES TO UNDERSTANDING BREAST CANCER AND METASTATIC BREAST CANCER SERIES: AVAILABLE ONLINE AND IN PRINT, ARE GUIDES THAT ADDRESS THE NEEDS OF PEOPLE WHO ARE NEWLY DIAGNOSED, IN TREATMENT, OR LIVING WITH METASTATIC DISEASE.CIAL MEDIA CONTENT AND LIVE WEBCAST PROGRAMS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jean Sachs Mss Mlsp Chief Executive Officer | Officer | 37.5 | $248,450 |
Catherine Ormerod Executive Vp, Strategy & Mission | 37.5 | $135,990 | |
Monica Steigerwald VP Development | 37.5 | $116,436 | |
Joanne Bursich VP Administration | 37.5 | $111,940 | |
Janine Guglielmino VP Mission Delivery | 37.5 | $107,047 | |
Celeste Terrinoni CFO (ended 05/2021) | Officer | 37.5 | $48,078 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Engine Room Technology Website Redesign And Maintenance | 12/30/21 | $188,575 |
Fourfront Llc Seo Consulting | 12/30/21 | $124,100 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $699,439 |
| Related organizations | $0 |
| Government grants | $994,086 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,584,763 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $5,278,288 |
| Total Program Service Revenue | $26,150 |
| Investment income | $449,782 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $119,332 |
| Net Income from Fundraising Events | -$141,176 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,732,376 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $261,441 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $345,200 |
| Compensation of current officers, directors, key employees. | $53,012 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,712,955 |
| Pension plan accruals and contributions | $124,404 |
| Other employee benefits | $147,240 |
| Payroll taxes | $23,386 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $125 |
| Fees for services: Accounting | $16,905 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $98,524 |
| Fees for services: Other | $444,301 |
| Advertising and promotion | $183,467 |
| Office expenses | $173,063 |
| Information technology | $278,585 |
| Royalties | $0 |
| Occupancy | $112,276 |
| Travel | $858 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $175,472 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $17,355 |
| Insurance | $10,441 |
| All other expenses | $0 |
| Total functional expenses | $4,163,466 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $139,160 |
| Savings and temporary cash investments | $4,674,677 |
| Pledges and grants receivable | $66,720 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $36,983 |
| Net Land, buildings, and equipment | $211,957 |
| Investments—publicly traded securities | $13,650,236 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $23,712 |
| Total assets | $18,803,445 |
| Accounts payable and accrued expenses | $253,182 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $253,182 |
| Net assets without donor restrictions | $17,626,612 |
| Net assets with donor restrictions | $923,651 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $18,803,445 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Living Beyond Breast Cancer has recieved totaling $1,515.
| Awarding Organization | Amount |
|---|---|
Webster U Walker Jr Foundation Inc Philadelphia, PA PURPOSE: OPERATIONS | $1,000 |
Gannett Foundations Inc Mclean, VA PURPOSE: CHARITABLE PURPOSE | $515 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Detectives Endowment Association Retirees Health Benefits Fund New York, NY | $3,766,379 | $20,182,671 |
Guardians Of The Sick Inc Brooklyn, NY | $5,970,531 | $15,096,609 |
Primary Care Development Corporation New York, NY | $131,968,263 | $17,167,926 |
Hancock County Schools Health Benefit Fund And Trust Findlay, OH | $800,339 | $11,750,938 |
Phila Hospital And Health Care District Philadelphia, PA | $10,467,230 | $11,116,555 |
Supplemental Health Insurance Program New York, NY | $18,871,693 | $10,314,338 |
Community Health Care Association Of New York State Inc New York, NY | $3,005,957 | $10,507,423 |
Rochester General Health System Workers Compensation Trust Rochester, NY | $64,779,425 | $9,122,686 |
Pennsylvania Life And Health Insurance Guaranty Association Bala Cynwyd, PA | $31,198,315 | $342,282 |
Healthlinkny Inc Binghamton, NY | $4,803,344 | $8,971,239 |
Mount Carmel Health Insurance Company Columbus, OH | $8,651,290 | $7,576,267 |
Southampton Hospital Association Southampton, NY | $88,601,547 | $8,188,950 |