National Tay Sachs And Allied Diseases Assoc Of Delaware Valley
- Assets
- $1.3m
- Revenue
- $88.7k
- Investments
- $208.8k
- Employees
- 1
- Location
- Jenkintown, PA
- Founding
- 01/1987
- Data as of
- 06/2021
- EIN
- 23-1967925
Organization Overview
National Tay Sachs And Allied Diseases Assoc Of Delaware Valley is located in Jenkintown, PA. The organization was established in 1987. According to its NTEE Classification (H99) the organization is classified as: Medical Research N.E.C., under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Tay Sachs And Allied Diseases Assoc Of Delaware Valley is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2021, National Tay Sachs And Allied Diseases Assoc Of Delaware Valley generated $88.7k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (1.9%) each year. All expenses for the organization totaled $77.2k during the year ending 06/2021. As we would expect to see with falling revenues, expenses have declined by (4.5%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SUPPORT OF RESEARCH, EDUCATION, OUTREACH & AWARENESS PROGRAMS AS THEY RELATE TO TAYSACHS, CANAVAN AND THE ALLIED DISEASES; FUNDRAISING FOR CARRIER DETECTION PROGRAMS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDED AWARENESS AND EDUCATION OF TAY-SACHS AND ALLIED DISEASESED TO THE PUBLIC THROUGH ADVERTSIENMENTS, NEWSLETTER AND EDUCATIONAL SEMINARS. SPOKE TO 75 STUDENTS, DISTRUBUTED 500 BROCHURES, HAD MORE THAN 10,000 VISITS TO THE EDUCATIONAL WEBSITE, DISTRIBUTED 100 FREE SCREEN CERTIFICATES.
CARRIER DETECTION PROGRAM AT EINSTEIN HOSPITAL; DESIGNED FOR COUNSELING AND DETECTION OF GENETIC DISEASES; 160 PARTIES BENEFITED FROM THE PROGRAM.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Rebecca Hunt Tantala Executive Di | Trustee | 15 | $28,000 |
Nancy Donegan Co-President | Officer | 1 | $0 |
Michael Ossip Co-President | Officer | 1 | $0 |
Lauri Sussman Siegel Co-President | Officer | 1 | $0 |
Matthew Fontana Board Member | Trustee | 1 | $0 |
Gwen Green Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $11,177 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $30,000 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $41,177 |
| Total Program Service Revenue | $0 |
| Investment income | $21,122 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $26,359 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $88,658 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $15,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $28,000 |
| Compensation of current officers, directors, key employees. | $7,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $3,223 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $6,518 |
| Fees for services: Other | $10,707 |
| Advertising and promotion | $0 |
| Office expenses | $10,432 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $976 |
| All other expenses | $0 |
| Total functional expenses | $77,157 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $45,829 |
| Savings and temporary cash investments | $86,910 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $920,710 |
| Investments—other securities | $208,844 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,262,293 |
| Accounts payable and accrued expenses | $16,449 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $16,449 |
| Net assets without donor restrictions | $1,031,604 |
| Net assets with donor restrictions | $214,240 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,262,293 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that National Tay Sachs And Allied Diseases Assoc Of Delaware Valley has recieved totaling $51.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $51 |
Endowment Analysis
| Beg. Balance | $936,625 |
| Earnings | $263,332 |
| Admin Expense | $6,518 |
| Other Expense | $20,000 |
| Ending Balance | $1,173,439 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
National Disease Research Interchange Philadelphia, PA | $6,059,781 | $7,072,153 |
Bronx Veterans Medical Research Foundation Inc Bronx, NY | $9,078,068 | $8,272,955 |
Citizens Committee For Children Of New York New York, NY | $3,634,711 | $3,821,090 |
Cleveland Va Medical Research And Education Foundation Cleveland, OH | $5,763,350 | $4,153,737 |
Pennsylvania Economy League Inc Philadelphia, PA | $2,641,467 | $4,041,486 |
Clinical Directors Network Inc New York, NY | $2,473,338 | $3,992,902 |
Paleontological Research Institution Ithaca, NY | $8,655,150 | $4,472,998 |
Financial Education & Research Foundation Inc Morristown, NJ | $4,733,275 | $3,972,102 |
Society For Investigative Dermatology Inc Cleveland, OH | $10,062,839 | $2,813,359 |
The Honorable Tina Brozman Foundation Inc New York, NY | $4,790,407 | $2,806,919 |
Aplastic Anemia & Mds International Foundation Inc Bethesda, MD | $5,199,376 | $3,484,930 |
Caring Cross Inc Gaithersburg, MD | $2,749,216 | $3,355,412 |