Myelodysplastic Syndromes Foundation
- Assets
- $3.3m
- Revenue
- $3.3m
- Investments
- $0.0
- Employees
- 8
- Location
- Yardville, NJ
- Founding
- 04/2000
- Data as of
- 12/2020
- EIN
- 22-3283911
Organization Overview
Myelodysplastic Syndromes Foundation, operating under the name Mds Foundation Inc, is located in Yardville, NJ. The organization was established in 2000. According to its NTEE Classification (G30) the organization is classified as: Cancer, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, Mds Foundation Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Mds Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Mds Foundation Inc generated $3.3m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 3.4% each year. All expenses for the organization totaled $2.0m during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
ESTABLISHED BY AN INTERNATIONAL GROUP OF PHYSICIANS AND RESEARCHERS TO PROVIDE AN ONGOING EXCHANGE OF INFORMATION RELATING TO MDS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2020. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATIONS "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIASON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST.
EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
THE MDS FOUNDATION PROVIDES RESEARCH GRANTS FOR SCIENTIFIC INVESTIGATORS. THE FOUNDATION IS DEDICATED TO FURTHERING THE RESEARCH INTO MDS AND WILL INVITE YOUNG INVESTIGATORS TO SUBMIT PROPOSALS FOR EITHER BASIC RESEARCH OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND MANAGEMENT OF THE MYELODYSPLASTIC SYNDROMES. IN ADDITION, THE FOUNDATION SPONSORS INTERNATIONAL WORKING GROUPS OF SCIENTISTS AND PHYSICIANS TO FURTHER DIAGNOSTIC, PROGNOSTIC AND TREATMENT TECHNIQUES. THE FOUNDATION HAS ALSO ESTABLISHED A PROCEDURE FOR CREATING AWARENESS OF CLINICAL TRIALS IN THE FIELD OF MDS AS WELL AS ASSISTING IN THE CLINICAL TRIAL RECRUITMENT PROCESS BY UTILIZING ITS OUTREACH TO
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tracey A Iraca Executive Di | Officer | 40 | $108,744 |
Janice Butchko Secretary | Officer | 40 | $67,122 |
Sandra Kurtin PHD Anp-C Aocn Treasurer | OfficerTrustee | 4 | $0 |
Stephen D Nimer MD Chariman | OfficerTrustee | 4 | $0 |
Luca Malcovati MD Board Member | Trustee | 4 | $0 |
Peter L Greenberg MD Board Member | Trustee | 4 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Mechanisms In Medicine Inc Video Prod. | 12/30/20 | $144,000 |
Powered By Professionals Fundraising | 12/30/20 | $115,500 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $68,028 |
| Fundraising events | $368,572 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,484,834 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,921,434 |
| Total Program Service Revenue | $354,364 |
| Investment income | $2,543 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$36,841 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,289,167 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $294,550 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $262,118 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $177,389 |
| Compensation of current officers, directors, key employees. | $39,672 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $212,400 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $24,892 |
| Payroll taxes | $32,281 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $70,225 |
| Fees for services: Accounting | $13,639 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $115,500 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $29,746 |
| Advertising and promotion | $32,150 |
| Office expenses | $136,516 |
| Information technology | $21,302 |
| Royalties | $0 |
| Occupancy | $39,109 |
| Travel | $23,776 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $281,953 |
| Interest | $1,381 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $190,539 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $2,011,416 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,749,602 |
| Savings and temporary cash investments | $1,030,354 |
| Pledges and grants receivable | $17,500 |
| Accounts receivable, net | $51,189 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $20,725 |
| Net Land, buildings, and equipment | $401,194 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $6,323 |
| Total assets | $3,276,887 |
| Accounts payable and accrued expenses | $157,616 |
| Grants payable | $0 |
| Deferred revenue | $73,509 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $106,441 |
| Total liabilities | $337,566 |
| Net assets without donor restrictions | $1,895,043 |
| Net assets with donor restrictions | $1,044,278 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,276,887 |
Grants Awarded
Over the last fiscal year, Myelodysplastic Syndromes Foundation has awarded $294,550 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
New York, NY PURPOSE: IWGPM RESEARCH | $201,885 |
Tampa, FL PURPOSE: IWGPM RESEARCH | $92,665 |
Grants Recieved
Over the last fiscal year, we have identified 10 grants that Myelodysplastic Syndromes Foundation has recieved totaling $47,972.
| Awarding Organization | Amount |
|---|---|
Stanrose Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $25,000 |
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $9,955 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $9,394 |
Ernsteen Family Foundation Buffalo Grove, IL PURPOSE: UNRESTRICTED | $1,500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $890 |
Robert Wood Johnson Foundation Princeton, NJ PURPOSE: MATCHING GIFTS | $650 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Cancer Care Inc New York, NY | $24,998,714 | $17,435,253 |
National Cancer Center Inc Plainview, NY | $3,772,145 | $4,573,453 |
Upmc-St Clair Hospital Cancer Center Pittsburgh, PA | $17,225,665 | $6,462,397 |
Childhood Leukemia Foundation Inc Brick, NJ | $1,169,163 | $3,510,998 |
Fayette Oncology Associates Pittsburgh, PA | $3,290,762 | $3,437,539 |
Israel Childrens Cancer Foundation Inc Lawrence, NY | $1,448,072 | $2,587,319 |
Oncology Nursing Foundation Pittsburgh, PA | $21,472,348 | $3,025,596 |
Myelodysplastic Syndromes Foundation Yardville, NJ | $3,276,887 | $3,289,167 |
Young Survival Coalition Inc New York, NY | $2,342,391 | $2,585,715 |
Northeast Regional Cancer Institute Scranton, PA | $4,609,331 | $1,321,839 |
Fox Chase Network Inc Philadelphia, PA | $2,062,877 | $1,199,277 |
Stupid Cancer Inc New York, NY | $1,917,985 | $2,132,166 |