Myelodysplastic Syndromes Foundation

Organization Overview

Myelodysplastic Syndromes Foundation, operating under the name Mds Foundation Inc, is located in Yardville, NJ. The organization was established in 2000. According to its NTEE Classification (G30) the organization is classified as: Cancer, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, Mds Foundation Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Mds Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2020, Mds Foundation Inc generated $3.3m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 3.4% each year. All expenses for the organization totaled $2.0m during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2020

Describe the Organization's Mission:

Part 3 - Line 1

ESTABLISHED BY AN INTERNATIONAL GROUP OF PHYSICIANS AND RESEARCHERS TO PROVIDE AN ONGOING EXCHANGE OF INFORMATION RELATING TO MDS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2020. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATIONS "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIASON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST.


EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.


THE MDS FOUNDATION PROVIDES RESEARCH GRANTS FOR SCIENTIFIC INVESTIGATORS. THE FOUNDATION IS DEDICATED TO FURTHERING THE RESEARCH INTO MDS AND WILL INVITE YOUNG INVESTIGATORS TO SUBMIT PROPOSALS FOR EITHER BASIC RESEARCH OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND MANAGEMENT OF THE MYELODYSPLASTIC SYNDROMES. IN ADDITION, THE FOUNDATION SPONSORS INTERNATIONAL WORKING GROUPS OF SCIENTISTS AND PHYSICIANS TO FURTHER DIAGNOSTIC, PROGNOSTIC AND TREATMENT TECHNIQUES. THE FOUNDATION HAS ALSO ESTABLISHED A PROCEDURE FOR CREATING AWARENESS OF CLINICAL TRIALS IN THE FIELD OF MDS AS WELL AS ASSISTING IN THE CLINICAL TRIAL RECRUITMENT PROCESS BY UTILIZING ITS OUTREACH TO


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Board, Officers & Key Employees

Name (title)Compensation
Tracey A Iraca
Executive Di
$108,744
Janice Butchko
Secretary
$67,122
Sandra Kurtin PHD Anp-C Aocn
Treasurer
$0
Stephen D Nimer MD
Chariman
$0
Luca Malcovati MD
Board Member
$0
Michael R Savona MD
Board Member
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Powered By Professionals
Fundraising
$115,500
Mechanisms In Medicine Inc
Video Prod.
$144,000
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$68,028
Fundraising events$368,572
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$2,484,834
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$2,921,434
Total Program Service Revenue$354,364
Investment income $2,543
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$36,841
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $3,289,167

Grants Awarded

Over the last fiscal year, Myelodysplastic Syndromes Foundation has awarded $294,550 in support to 2 organizations.

Grant RecipientAmount

MEMORIAL SLOAN KETTERING CANCER CEN

Org PageRecipient Profile

New York, NY

PURPOSE: IWGPM RESEARCH

$201,885

LEE MOFFITT CANCER CENTER

Org PageRecipient Profile

Tampa, FL

PURPOSE: IWGPM RESEARCH

$92,665
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 10 grants that Myelodysplastic Syndromes Foundation has recieved totaling $47,972.

Awarding OrganizationAmount
Stanrose Foundation

Wilmington, DE

PURPOSE: GENERAL & UNRESTRICTED

$25,000
Paypal Charitable Giving Fund

Washington, DC

PURPOSE: General Support

$9,955
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$9,394
Ernsteen Family Foundation

Buffalo Grove, IL

PURPOSE: UNRESTRICTED

$1,500
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$890
Robert Wood Johnson Foundation

Princeton, NJ

PURPOSE: MATCHING GIFTS

$650
View Grant Recipient Profile

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