Narcolepsy Network Inc
- Assets
- $615.8k
- Revenue
- $370.0k
- Investments
- $0.0
- Employees
- 4
- Location
- Camas, WA
- Founding
- 12/1990
- Data as of
- 12/2021
- EIN
- 22-2762623
Organization Overview
Narcolepsy Network Inc is located in Camas, WA. The organization was established in 1990. According to its NTEE Classification (G99) the organization is classified as: Voluntary Health Associations & Medical Disciplines N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Narcolepsy Network Inc employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Narcolepsy Network Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Narcolepsy Network Inc generated $370.0k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (0.2%) each year. All expenses for the organization totaled $462.2k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
NARCOLEPSY NETWORK IS DEDICATED TO IMPROVING THE LIVES OF MEN, WOMEN, AND CHILDREN WITH NARCOLEPSY. THE ORGANIZATIONS GOALS INCLUDE INCREASING PUBLIC AWARENESS TO FOSTER EARLY DIAGNOSES, ADVOCATING FOR ALL PEOPLE WITH NARCOLEPSY (PWNS), PROMOTING AND SUPPORTING NARCOLEPSY AND RELATED RESEARCH, AND PROVIDING EDUCATION AND RESOURCES BOTH TO PEOPLE LIVING WITH NARCOLEPSY AND THE PUBLIC AT LARGE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ANNUAL CONFERENCE
AWARENESS AND EDUCATION - VIRTUAL CLINICAL UPDATE WEBINAR SERIES
SUPPORT AND ADVOCACY - PROVIDE WEEKLY VIRTUAL SUPPORT GROUPS AND FINANICAL ASSISTANCE TO IN-PERSON SUPPORT GROUPS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Keith Harper President | OfficerTrustee | 20 | $0 |
Rajeev Sachdeva Secretary | OfficerTrustee | 2.5 | $0 |
Luis E Ortiz MD President | OfficerTrustee | 2.5 | $0 |
Cynthia Zorn Vice President | OfficerTrustee | 2.5 | $0 |
Mee Warren Treasurer | OfficerTrustee | 2.5 | $0 |
Sharon Oshaughnessy Vice President | OfficerTrustee | 15 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $4,983 |
| Membership dues | $0 |
| Fundraising events | $29,720 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $320,481 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $355,184 |
| Total Program Service Revenue | $21,861 |
| Investment income | $1,247 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$8,265 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $370,027 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $98,001 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $7,806 |
| Fees for services: Management | $262,644 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $9,225 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $5,361 |
| Office expenses | $0 |
| Information technology | $25,230 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $200 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $22,390 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $4,500 |
| All other expenses | $1,966 |
| Total functional expenses | $462,162 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $90,760 |
| Savings and temporary cash investments | $390,319 |
| Pledges and grants receivable | $4,035 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $18,528 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $109,700 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $2,500 |
| Total assets | $615,842 |
| Accounts payable and accrued expenses | $10,692 |
| Grants payable | $0 |
| Deferred revenue | $5,603 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $16,295 |
| Net assets without donor restrictions | $442,972 |
| Net assets with donor restrictions | $156,575 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $615,842 |
Grants Awarded
Over the last fiscal year, Narcolepsy Network Inc has awarded $13,770 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Scottsville, KY PURPOSE: Family Retreat Grant for families with children with narcolepsy | $7,500 |
Hampton, VA PURPOSE: Conference Presentation Grant | $6,270 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Narcolepsy Network Inc has recieved totaling $2,319.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,319 |
Pentair Foundation Golden Valley, MN PURPOSE: MATCHING GIFT | $0 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Washington Institute For Coagulation Seattle, WA | $62,548,021 | $104,303,330 |
Vinnova Portland, OR | $117,552 | $1,020,031 |
Narcolepsy Network Inc Camas, WA | $615,842 | $370,027 |
Us Human Proteome Organization Portland, OR | $664,389 | $226,443 |
Association Of Providers For Children With Complex Medical Need Vancouver, WA | $224,372 | $0 |
Ok You Inc Portland, OR | $51,182 | $0 |
Pink Phoenix Dragon Boat Team Portland, OR | $145,442 | $0 |
Ovarian And Breast Cancer Alliance Of Washington State Seattle, WA | $147,924 | $0 |
John Butler Lung Foundation Boise, ID | $113,412 | $0 |