Epilepsy Foundation New England Inc

TO HELP PEOPLE AND FAMILIES EFFECTED BY EPILEPSY IN NEW ENGLAND.

FUNDING SUPPORT & DONATION CENTER: OUR DONATION CENTER FUNDS EPILEPSY FOUNDATION NEW ENGLAND'S MISSION AND SUPPORTS OUR ADVANCEMENT OF RESEARCH IN EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO SHOWCASE ADVANCES AND RAISE MONEY FOR RESEARCH, IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN UNDERSTANDING RESEARCH IN EPILEPSY.

RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN 12 HOSPITALS AND 4 NONPROFIT ORGANIZATIONS. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND INFO/REFERRAL. IN FY20, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 48 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 50 SUPPORT GROUPS PER MONTH, SERVING 400-500 PEOPLE PER YEAR. EFNE'S 12-MEMBER VOLUNTEER REMEMBRANCE NETWORK PROVIDES BEREAVEMENT SUPPORT TO FAMILIES WHO LOSE A LOVED ONE TO EPILEPSY. THE FOUNDATION PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS, AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.

YOUTH SERVICES: EFNE PROVIDES 10-12 SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING 250-300 PARTICIPANTS. OUR YOUNG LEADERS NETWORK ENGAGES 525 TEENS AND YOUNG ADULTS IN SKILL-BUILDING AND SUPPORT THROUGH MONTHLY MEETINGS AND COMMUNITY SERVICE; PARTICIPANTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBERS, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION-AGE YOUTH WITH COMMUNITY BUILDING AND SKILLS AS THEY TRANSITION TO ADULTHOOD FOR 40 PEOPLE PER YEAR. KIDS CONNECT BUILDS COMMUNITY AND PROVIDES RECREATION FOR 200+ MIDDLE SCHOOL STUDENTS. HUNDREDS OF ONLINE VIRTUAL SUPPORT GROUPS AND MEET UPS PROVIDE SUPPORT TO OUR YOUTH. IN MARCH-JUNE 2021, DURING THE INITIAL PHASE OF THE PANDEMIC, ONLINE CHILDREN'S GROUPS MET 10 TIMES PER WEEK (2X/WEEKDAY), SERVING 60 CHILDREN, AND YOUNG ADULT GROUPS MET 15 TIMES PER WEEK (3X/WEEKDAY) SERVING 100 YOUTH. OUR HOPE LION CAMPAIGN HAS REACHED 800+ FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY BEGIN THEIR JOURNEY WITH EPILEPSY.