Alliance For Care At The End Oflife

Organization Overview

Alliance For Care At The End Oflife, operating under the name Hospice Action Network, is located in Alexandria, VA. The organization was established in 2008. According to its NTEE Classification (P01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Human Services and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hospice Action Network is a 501(c)(4) and as such, is described as a "Civic League, Social Welfare Organization, and Local Association of Employees" by the IRS.

For the year ending 12/2021, Hospice Action Network generated $1.3m in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (0.8%) each year. All expenses for the organization totaled $1.2m during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (2.0%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO PROVIDE A MORE AGGRESSIVE AND COMPREHENSIVE ADVOCACY VOICE THAT WILL SERVE THE ENTIRE FIELD AND ONE OF AMERICA'S MOST VULNERABLE POPULATIONS - THOSE NEARING THE END OF LIFE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

HAN CONTINUED TO SERVE AS AN EFFECTIVE ADVOCATE AND RESOURCE FOR HOSPICE AND PALLIATIVE CARE PROVIDERS THROUGHOUT 2021. WITH THE COMMENCEMENT OF A NEW ADMINISTRATION, HAN SET OUT THE YEAR BY IDENTIFYING AND ADVOCATING TO THE WHITE HOUSE ON KEY POLICY PRIORITIES, INCLUDING PROTECTING PATIENTS AND FAMILIES, INNOVATING HOW SERIOUS-ILLNESS CARE IS PROVIDED, AND IMPROVING ACCESS TO HOSPICE AND PALLIATIVE CARE. AS THE HOSPICE AND PALLIATIVE CARE COMMUNITY CONTINUED TO GRAPPLE WITH THE PANDEMIC, HAN SUCCESSFULLY MOBILIZED GRASSROOTS ADVOCATES TO PROTECT PROVIDER RELIEF FUNDS FROM REAPPROPRIATION AS PART OF THE INFRASTRUCTURE INVESTMENT AND JOBS ACT, SECURED TEMPORARY EXTENSION OF THE 2% MEDICARE SEQUESTER MORATORIUM FOR THREE ADDITIONAL MONTHS INTO 2022, AND CONTINUED TO SUPPORT POTENTIAL LEGISLATIVE AVENUES FOR EXTENDED OR PERMANENT TELEHEALTH FLEXIBILITIES. THROUGH ENGAGEMENT WITH THE WHITE HOUSE COVID-19 TASK FORCE, HHS, AND FEMA, NHPCO CONTINUED TO ADVOCATE FOR PRIORITIZATION OF HOSPICE PROVIDERS AND THE PATIENTS AND FAMILIES THEY SERVE FOR VACCINES. HAN AND NHPCO'S ADVOCACY ALSO RESULTED IN SEVERAL KEY CHANGES IN CMS'S IMPLEMENTATION OF THE HOSPICE ACT, INCLUDING SUSPENSION OF PAYMENTS FOR NEW ADMISSIONS ONLY, DELAYED CREATION OF THE SPECIAL FOCUS PROGRAM UNTIL A TECHNICAL EXPERT PANEL IS CONVENED, AND UPDATED LANGUAGE TO ADDRESS SURVEYOR CONFLICT OF INTEREST. HAN CONTINUED TO WORK WITH CONGRESSIONAL OFFICES TO ADVOCATE FOR THE ESTABLISHMENT OF A COMMUNITY-BASED PALLIATIVE CARE DEMONSTRATION AT CMMI; THIS INCLUDED CHAMPIONING THE INTRODUCTION OF S. 2565, THE EXPANDING ACCESS TO PALLIATIVE CARE ACT, AND A HOUSE LETTER OF SUPPORT FOR A DEMONSTRATION. HAN HELD A VIRTUAL FLY-IN WITH OVER 160 ADVOCATES ACROSS THE COUNTRY MEETING WITH OVER 200 OFFICES INCLUDING 20 MEMBER-LEVEL MEETINGS SUPPORTING INCREASED ACCESS TO HOSPICE, TELEHEALTH FLEXIBILITIES, AND A COMMUNITY BASED PALLIATIVE CARE MODEL. OTHER ACTIVITIES INCLUDED CONTINUING TO SPEARHEAD THE DEVELOPMENT OF A BILL TO FUND BEREAVEMENT CARE AND IDENTIFYING OPPORTUNITIES TO PASS LANGUAGE FROM THE PALLIATIVE CARE AND HOSPICE EDUCATION AND TRAINING ACT, WHICH WAS SUCCESSFULLY INCLUDED IN A HOUSE VERSION OF THE BUILD BACK BETTER RECONCILIATION PACKAGE.


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Board, Officers & Key Employees

Name (title)Compensation
David Totaro
Chair
$0
Susan Lloyd
Vice-Chair
$0
Kate Proctor
Treasurer
$0
Brian Bertram
Secrectary
$0
Keith Lagnese
At-Large
$0
Edo Banach
President
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
The Nickles Group Llc
Legislative And Regulatory Services
$207,083
Hannegan Landau Poersch
Legislative And Regulatory Services
$227,097
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,330,283
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,330,283
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,330,283

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