World Federation Of Hemophilia Usa

Organization Overview

World Federation Of Hemophilia Usa, operating under the name Wfh Usa, is located in Albany, NY. The organization was established in 1997. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Wfh USA is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Wfh USA generated $823.0m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 35.5% each year . All expenses for the organization totaled $822.8m during the year ending 12/2021. While expenses have increased by 35.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

AFFILIATED TO THE WORLD FEDERATION OF HEMOPHILIA AN INTERNATIONAL CHARITABLE ORGANIZATION BASED IN MONTREAL THE MISSION OF THE WORLD FEDERATION OF HEMOPHILIA USA IS IS TO ADVANCE THE GLOBAL MISSION OF WFH WITHIN THE US TO IMPROVE AND SUSTAIN CARE FOR PEOPLE WITH INHERITED BLEEDING DISORDERS AROUND THE WORLD

Describe the Organization's Program Activity:

Part 3 - Line 4a

WFH HUMANITARIAN AID PROGRAM THE WFH HUMANITARIAN AID PROGRAM IMPROVES THE LACK OF ACCESS TO CARE AND TREATMENT BY PROVIDING MUCH-NEEDED SUPPORT TO NATIONAL MEMBER ORGANIZATIONS NMOS HEMOPHILIA TREATMENT CENTRES HTCS AND HEALTHCARE PRACTITIONERS HCPS IN EMERGING COUNTRIES. THIS SUPPORT COMES IN THE FORM OF EDUCATION TRAINING AND DONATED FACTOR AND NON-FACTOR REPLACEMENT THERAPY. THE OBJECTIVE OF THE PROGRAM IS TO MAKE IT POSSIBLE FOR PEOPLE WITH INHERITED BLEEDING DISORDERS TO RELIABLY ACCESS SAFE AND CONSISTENT TREATMENT AND CARE REGARDLESS OF THEIR TYPE OF BLEEDING DISORDER GENDER OR LOCATION. WFH USA PROVIDES TENS OF THOUSANDS OF PEOPLE LIVING WITH HEMOPHILIA ACCESS TO CARE AND ALLOWS THE INTRODUCTION OF PROPHYLAXIS AND ELECTIVE SURGERIES IN MORE THAN 60 COUNTRIES AROUND THE WORLD. THE PROGRAM PROMOTES IDENTIFICATION AND DIAGNOSIS INCENTIVIZES GOVERNMENTS TO INVEST IN BLEEDING DISORDERS CARE AND DEMONSTRATES THE POSITIVE IMPACT OF INVESTMENT IN TREATMENT. IN ACCORDANCE WITH THE COLLABORATION AGREEMENT BETWEEN WFH USA AND THE WFH WFH USA IS EXCLUSIVELY RESPONSIBLE FOR ALL SOLICITATIONS OF DONORS AND POTENTIAL DONORS OF IN-KIND CONTRIBUTIONS OF CLOTTING FACTOR AND OTHER PHARMACEUTICAL PRODUCTS FOR USE IN THE WFH HUMANITARIAN AID PROGRAM AND ALL MONETARY DONATIONS TO SUPPORT THE WFH HUMANITARIAN AID PROGRAM. IN ACCORDANCE WITH THE COLLABORATION AGREEMENT BETWEEN WFH USA AND THE WFH WFH USA PERIODICALLY GRANTS CONTRIBUTIONS RECEIVED TO SUPPORT THE WFH HUMANITARIAN AID PROGRAMS TO THE WFH AS NEEDED TO CARRY OUT THE WFH'S RESPONSIBILITIES WITH RESPECT TO THE WFH HUMANITARIAN AID PROGRAM


WFH TRAINING AND EDUCATION PROGRAM THE WFH PROVIDES EDUCATION AND TRAINING TO ITS MEMBER ORGANIZATIONS AND THE HEALTHCARE PROVIDERS WITH WHOM THEY COLLABORATE THROUGH HEALTHCARE DEVELOPMENT PROGRAMS IN-PERSON AND VIRTUAL WORKSHOPS AND EDUCATIONAL EVENTS AND THE DEVELOPMENT AND DISTRIBUTION OF EDUCATIONAL MATERIALS TO ENSURE THEY HAVE THE KNOWLEDGE AND TOOLS REQUIRED TO EFFECTIVELY SUPPORT PEOPLE LIVING WITH BLEEDING DISORDERS IN THEIR COMMUNITIES. IN ACCORDANCE WITH THE COLLABORATION AGREEMENT BETWEEN WFH USA AND THE WFH WFH USA PERIODICALLY GRANTS CONTRIBUTIONS RECEIVED TO SUPPORT THE WFH TRAINING AND EDUCATION PROGRAMS TO THE WFH AS NEEDED TO CARRY OUT THE WFH'S RESPONSIBILITIES WITH RESPECT TO THE WFH TRAINING AND EDUCATION PROGRAM


WFH RESEARCH PROGRAM THE WFH RESEARCH PROGRAM WORKS TO ENHANCE DATA COLLECTION AND RESEARCH ACTIVITIES AROUND THE WORLD TO BUILD THE EVIDENCE BASE FOR THE OPTIMAL MANAGEMENT OF INHERITED BLEEDING DISORDERS. IT FILLS A UNIQUE NEED WITHIN THE GLOBAL COMMUNITY AND HAS GREAT POTENTIAL TO ADD VALUE TO THE EXISTING EVIDENCE BASE. PART OF THE RESEARCH PROGRAM THE WORLD BLEEDING DISORDERS REGISTRY WBDR IS A WEB-BASED DATA ENTRY SYSTEM THAT PROVIDES A PLATFORM FOR A NETWORK OF HEMOPHILIA TREATMENT CENTERS HTCS AROUND THE WORLD TO COLLECT UNIFORM AND STANDARDIZED DATA AND GUIDE CLINICAL PRACTICE. IN ACCORDANCE WITH THE COLLABORATION AGREEMENT BETWEEN WFH USA AND THE WFH WFH USA PERIODICALLY GRANTS CONTRIBUTIONS RECEIVED TO SUPPORT THE WFH RESEARCH PROGRAM TO THE WFH AS NEEDED TO CARRY OUT THE WFH'S RESPONSIBILITIES WITH RESPECT TO THE WFH RESEARCH PROGRAM.


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Board, Officers & Key Employees

Name (title)Compensation
Eric Stolte
President
$0
Ken Trader
Treasurer
$0
Amy Dunn
Vice-President
$0
Alain Baumann
Executive Director Secretary
$0
Jennifer Laliberte
National Director Ex-Officio
$0
Glenn Pierce
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$822,907,635
Noncash contributions included in lines 1a–1f $819,261,831
Total Revenue from Contributions, Gifts, Grants & Similar$822,907,635
Total Program Service Revenue$42,817
Investment income $2,556
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $822,953,008

Grants Recieved

Over the last fiscal year, we have identified 4 grants that World Federation Of Hemophilia Usa has recieved totaling $180,801.

Awarding OrganizationAmount
Hemophilia Alliance Group Purchasing Organization Inc

Lansdale, PA

PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.

$170,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$8,283
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$2,500
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$18
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$550,651
Net Contributions$51,431
Ending Balance$602,082

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