Wilson Disease Association

Organization Overview

Wilson Disease Association is located in New York, NY. The organization was established in 1985. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Wilson Disease Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Wilson Disease Association generated $335.3k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.4% each year. All expenses for the organization totaled $1.3m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO PROVIDE SUPPORT AND ASSISTANCE TO INDIVIDUALS WITH WILSON'S DISEASE AND AID IN RESEARCH FOR TREATMENT.

Describe the Organization's Program Activity:

Part 3 - Line 4a

SUPPORT OF RESEARCH THROUGH THE WILSON DISEASE PATIENT REGISTRY


MAINTAIN INFORMATIVE WEBSITE, PROVIDE MEDICATION ASSISTANCE, PUBLISH/MAIL NEWSLETTERS. SUPPORT LOCAL PATIENT MEETINGS. ANNUAL CONFERENCE FOR PATIENTS.


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Board, Officers & Key Employees

Name (title)Compensation
Mary L Graper
Vice President
$0
Jean Perog
President
$0
Carol Terry
Secretary
$0
Steve Walsh
Treasurer
$0
Rachel Albert
Vice President
$0
Drew Katz
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$6,694
Fundraising events$0
Related organizations$0
Government grants $35,991
All other contributions, gifts, grants, and similar amounts not included above$234,090
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$276,775
Total Program Service Revenue$0
Investment income $3,599
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $33,969
Net Income from Fundraising Events $20,983
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $335,326

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Wilson Disease Association has recieved totaling $33,258.

Awarding OrganizationAmount
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$11,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$10,844
Network For Good Inc

Washington, DC

PURPOSE: UNRESTRICTED

$8,418
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,496
Wkw Family Foundation Inc

King Of Prussia, PA

PURPOSE: TO SUPPORT THE ORGANIZATION IN ITS EFFORTS TO RESEARCH WILSON DISEASE

$1,000
Pfizer Foundation Inc

New York, NY

PURPOSE: MATCHING GIFTS

$500
View Grant Recipient Profile

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