Crohns & Colitis Foundation Inc

Organization Overview

Crohns & Colitis Foundation Inc is located in New York, NY. The organization was established in 1966. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Crohns & Colitis Foundation Inc employed 376 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Crohns & Colitis Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Crohns & Colitis Foundation Inc generated $78.0m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.1% each year. All expenses for the organization totaled $78.3m during the year ending 12/2021. While expenses have increased by 2.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2014, Crohns & Colitis Foundation Inc has awarded 520 individual grants totaling $131,311,583. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS (CONTINUED ON SCHEDULE O)

Describe the Organization's Program Activity:

Part 3 - Line 4a

SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $450 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). (CONTINUED IN SCHEDULE O)THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION'S INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 25,000 PATIENTS, INCLUDING 160,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD.


THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE MILLIONS OF IBD PATIENTS AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL. WEBCASTS, SUPPORT GROUPS, IBD HELP CENTER, AND PRINTED MATERIALS PROVIDE ACCURATE AND UP-TO-DATE INFORMATION. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL WORKSHOPS, AND ITS ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN A RECENT IMPACT STUDY, OVER 70% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. (CONTINUED ON SCHEDULE O)IN 2021 THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY WITH IBD, AND EDUCATE PEOPLE EXPERIENCING SYMPTOMS ABOUT THE IMPORTANCE OF SEEING A SPECIALIST TO GET DIAGNOSED FASTER AND REDUCE SUFFERING.


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Board, Officers & Key Employees

Name (title)Compensation
Michael Osso
President/ceo(non-Voting)
$587,399
Caren Heller
Chief Science Officer
$388,803
Robert Territo
Cfo/coo
$296,257
Rohit Suri
Chief Technology Officer
$272,418
Michael Elkow
Chief Field Officer
$261,144
Allison Coffey
Chief Development Officer
$249,186

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Deloitte Consulting Llp
It Support For Ibd Plexus
$1,337,594
Blackbaud
Donor Database
$914,222
Nagarro Inc
Project Support
$983,976
Salesforcecom Inc
Salesforce Platform Transfer
$785,426
Chapman Cubine And Hussey Inc
Marketing Consultants
$577,867
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$1,337,175
Membership dues$0
Fundraising events$25,249,968
Related organizations$0
Government grants $6,393,325
All other contributions, gifts, grants, and similar amounts not included above$37,258,235
Noncash contributions included in lines 1a–1f $511,238
Total Revenue from Contributions, Gifts, Grants & Similar$70,238,703
Total Program Service Revenue$6,695,152
Investment income $298,743
Tax Exempt Bond Proceeds $0
Royalties $486,445
Net Rental Income $0
Net Gain/Loss on Asset Sales $302,534
Net Income from Fundraising Events -$505,293
Net Income from Gaming Activities $505,294
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $78,027,022

Grants Awarded

Over the last fiscal year, Crohns & Colitis Foundation Inc has awarded $15,250,359 in support to 71 organizations.

Grant RecipientAmount

MASSACHUSETTS GENERAL HOSPITAL

Org PageRecipient Profile

Somerville, MA

PURPOSE: RESEARCH

$1,328,873

WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY

PURPOSE: RESEARCH

$754,121

UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL

Org PageRecipient Profile

Chapel Hill, NC

PURPOSE: RESEARCH

$710,957

TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA

Org PageRecipient Profile

Philadelphia, PA

PURPOSE: RESEARCH

$671,739

ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI

Org PageRecipient Profile

New York, NY

PURPOSE: RESEARCH

$610,551

THE BRIGHAM AND WOMEN'S HOSPITAL INC

Org PageRecipient Profile

Somerville, MA

PURPOSE: RESEARCH

$566,255
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Crohns & Colitis Foundation Inc has recieved totaling $13,000.

Awarding OrganizationAmount
Forest Fund Inc

Indianapolis, IN

PURPOSE: OPERATIONS

$5,000
Edmund J And Afton S Greenwell Foundation

Mantua, UT

PURPOSE: FUND RESEARCH

$5,000
Loeb Family Foundation Inc

Winnetka, IL

PURPOSE: CHARITABLE CONTRIBUTION

$1,000
Coddon Family Foundation

Nashville, TN

PURPOSE: UNRESTRICTED GIFT - MEDICAL RESEARCH

$1,000
Hagani Foundation

Woodbridge, CT

PURPOSE: MEDICAL RESEARCH

$500
Hagani Foundation

Woodbridge, CT

PURPOSE: MEDICAL RESEARCH

$500
View Grant Recipient Profile

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