Cystic Fibrosis Foundation - Group Return For The Chapters
- Assets
- $0.0
- Revenue
- $114.0m
- Investments
- $0.0
- Employees
- 364
- Location
- Bethesda, MD
- Founding
- Data as of
- 12/2015
- EIN
- 13-6161105
Organization Overview
Cystic Fibrosis Foundation - Group Return For The Chapters is located in Bethesda, MD. As of 12/2015, Cystic Fibrosis Foundation - Group Return For The Chapters employed 364 individuals. Cystic Fibrosis Foundation - Group Return For The Chapters is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2015
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
MEDICAL PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION HAS 70 OFFICES IN 39 STATES THAT HELP TO COMMUNICATE AND DISTRIBUTE INFORMATION ABOUT SCIENTIFIC STUDIES AND INVESTIGATIONS, CYSTIC FIBROSIS CENTERS AND OTHER MEDICAL PROGRAMS.
PUBLIC INFORMATION AND EDUCATION: TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CYSTIC FIBROSIS FOUNDATION HAS PROGRAMS DESIGNED TO INFORM CYSTIC FIBROSIS PATIENTS, THEIR FAMILIES AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2015, CHAPTER OFFICES DISTRIBUTED EDUCATIONAL MATERIALS TO THE CF COMMUNITY, INCLUDING AUDIO AND VISUAL AIDS, EXHIBITS AND CORRESPONDENCE. THE CHAPTER OFFICE ALSO MADE AVAILABLE UP TO 10 PUBLICATIONS AND 50 VIDEOS THAT WERE DEVELOPED SPECIFICALLY FOR THE CF COMMUNITY BY THE CYSTIC FIBROSIS FOUNDATION.
COMMUNITY SERVICE PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM, AND EMPOWER PATIENTS AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING THOSE WITH CYSTIC FIBROSIS. APPROXIMATELY 28,900 PATIENTS WERE SERVED IN 2015 INCLUDING APPROXIMATELY 850 PATIENTS WHO WERE NEWLY DIAGNOSED.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michael L Beatty ESQ Trustee | Trustee | 3 | $0 |
Richard L Dandurand Vice Chairman | Trustee | 3 | $0 |
Louis Defalco Trustee | Trustee | 3 | $0 |
Richard J Gray ESQ Vice Chairman | Trustee | 3 | $0 |
Carole B Griego MD Trustee | Trustee | 3 | $0 |
Susan L Hook Trustee | Trustee | 3 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Vail Cascade Resort Spa Event Venue | 12/30/15 | $823,353 |
Softrek Corporation Data Processing | 12/30/15 | $599,014 |
Gg Outfitters Event Material | 12/30/15 | $377,834 |
Premium Works Event Material | 12/30/15 | $231,020 |
Great Lakes Integrated Printing | 12/30/15 | $203,350 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $1,099,604 |
| Membership dues | $0 |
| Fundraising events | $90,388,671 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $21,473,843 |
| Noncash contributions included in lines 1a–1f | $10,359,772 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $112,962,118 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $1,009,556 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $113,971,674 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $15,325,109 |
| Pension plan accruals and contributions | $821,455 |
| Other employee benefits | $2,015,575 |
| Payroll taxes | $1,265,395 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $62,886 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $123,514 |
| Advertising and promotion | $12,455 |
| Office expenses | $2,521,155 |
| Information technology | $1,342,569 |
| Royalties | $0 |
| Occupancy | $2,356,125 |
| Travel | $607,093 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $269,525 |
| Interest | $0 |
| Payments to affiliates | $86,659,882 |
| Depreciation, depletion, and amortization | $490,408 |
| Insurance | $0 |
| All other expenses | $98,528 |
| Total functional expenses | $113,971,674 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $0 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Unrestricted restricted net Assets | $0 |
| Temporarily restricted net Assets | $0 |
| Permanently restricted net Assets or current funds | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total net assets or fund balances | $0 |