Sjogrens Foundation Inc
- Assets
- $2.8m
- Revenue
- $2.9m
- Investments
- $0.0
- Employees
- 16
- Location
- Reston, VA
- Founding
- 05/1986
- Data as of
- 06/2022
- EIN
- 11-2779073
Organization Overview
Sjogrens Foundation Inc is located in Reston, VA. The organization was established in 1986. According to its NTEE Classification (G40) the organization is classified as: Diseases of Specific Organs, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Sjogrens Foundation Inc employed 16 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sjogrens Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Sjogrens Foundation Inc generated $2.9m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.0% each year. All expenses for the organization totaled $2.3m during the year ending 06/2022. While expenses have increased by 1.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Sjogrens Foundation Inc has awarded 42 individual grants totaling $1,691,250. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION.
Describe the Organization's Program Activity:
THE SJOGREN'S FOUNDATION AWARDED THREE RESEARCH GRANTS TO UNIVERSITY AFFILIATED RESEARCHERS IN MAY 2022. THE FOUNDATION ALSO OPENED A NEW GRANT FOR DYSAUTONOMIA IN SJOGREN'S. WORK IN THE BIOMARKER'S CONSORTIUM AND THE FNIH AMP AIM RESEARCH ON BIOMARKERS IN AUTOIMMUNE DISEASES CONTINUES. THE SJOGREN'S FOUNDATION FUNDED THE NEW LIVING WITH SJOGREN'S PATIENT SURVEY IN 2021 AND BEGINNING IN 2022 THE FOUNDATION, IS UTILIZING THE FINDINGS TO HIGHLIGHT THE EXPERIENCES PATIENTS HAVE ON A DAILY BASIS WHILE LIVING WITH THIS DISEASE.
NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.
AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO HEALTHCARE PROFESSIONALS. IN JANUARY 2022, THE FOUNDATION LAUNCHED ITS FIRST PROFESSIONAL CONFERENCE, THE STATE OF SJOGREN'S, TARGETING ALL PROVIDERS IN ANY SPECIALTY, RESEARCHERS, AND CORPORATE SCIENTISTS INTERESTED IN THE FIELD OF SJOGREN'S. ADDITIONALLY, THE FOUNDATION PARTNERED WITH PRI-MED TO PRESENT A SJOGREN'S CME COURSE FOR PRIMARY CARE PROVIDERS.
OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Janet Church President And CEO | Officer | 40 | $286,490 |
Katherine Morland Vice President Of Medical & Scientific | Officer | 40 | $161,860 |
Sheriese Defruscio Vice President Of Corporate Relations | 40 | $140,916 | |
Ben Basloe Vice President Of Philanthropy | 40 | $136,680 | |
Susan Barajas Chair-Elect | OfficerTrustee | 2 | $0 |
David Schrader Secretary | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $319,514 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,071,595 |
| Noncash contributions included in lines 1a–1f | $64,051 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,391,109 |
| Total Program Service Revenue | $514,416 |
| Investment income | $24,989 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $2,800 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$6,986 |
| Net Income from Fundraising Events | -$19,007 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $29,391 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,943,480 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $175,255 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $500,734 |
| Compensation of current officers, directors, key employees. | $34,050 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $765,286 |
| Pension plan accruals and contributions | $23,194 |
| Other employee benefits | $101,711 |
| Payroll taxes | $82,300 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $9,184 |
| Fees for services: Accounting | $31,736 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $7,207 |
| Fees for services: Other | $43,035 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $17,992 |
| Royalties | $0 |
| Occupancy | $89,377 |
| Travel | $6,773 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $18,500 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $41,336 |
| Insurance | $18,204 |
| All other expenses | $126,352 |
| Total functional expenses | $2,322,444 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $752,247 |
| Savings and temporary cash investments | $669,928 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $87,290 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $7,239 |
| Prepaid expenses and deferred charges | $10,392 |
| Net Land, buildings, and equipment | $68,022 |
| Investments—publicly traded securities | $1,159,015 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $36,342 |
| Other assets | $8,949 |
| Total assets | $2,799,424 |
| Accounts payable and accrued expenses | $46,534 |
| Grants payable | $281,250 |
| Deferred revenue | $296,545 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $104,553 |
| Total liabilities | $728,882 |
| Net assets without donor restrictions | $1,069,646 |
| Net assets with donor restrictions | $1,000,896 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,799,424 |
Grants Awarded
Over the last fiscal year, Sjogrens Foundation Inc has awarded $125,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: RESEARCH GRANT | $75,000 |
UNIVERSITY OF WASHINGTON PURPOSE: RESEARCH GRANT | $25,000 |
Baltimore, MD PURPOSE: RESEARCH GRANT | $25,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Sjogrens Foundation Inc has recieved totaling $500.
| Awarding Organization | Amount |
|---|---|
Henry J Fox Fund Vienna, VA PURPOSE: CHARITY | $500 |
Endowment Analysis
| Beg. Balance | $1,000,896 |
| Ending Balance | $1,000,896 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Association For The Study Of Liver Diseases Alexandria, VA | $42,394,196 | $14,513,598 |
Renal Physicians Association Rockville, MD | $5,813,955 | $2,984,483 |
Sjogrens Foundation Inc Reston, VA | $2,799,424 | $2,943,480 |
American Thyroid Association Inc Alexandria, VA | $12,585,533 | $4,037,252 |
International Lyme And Associated Diseases Educational Foundation In Chevy Chase, MD | $512,347 | $173,322 |
Care About Fibroids Inc Washington, DC | $7,054 | $0 |
Association Of Minority Health Professions Schools Inc Washington, DC | $564,167 | $168,436 |
National Forum Of Esrd Networks Inc Henrico, VA | $686,091 | $82,539 |
Lyme Warrior Inc Newport, VA | $44,648 | $0 |
Ohio Renal Association Wheeling, WV | $313,998 | $0 |
Vitiligo Support International Inc Lynchburg, VA | $248,747 | $0 |
Childhood Brain Tumor Foundation Germantown, MD | $246,663 | $133,233 |