National Mps Society Inc

Organization Overview

National Mps Society Inc is located in Durham, NC. The organization was established in 1986. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, National Mps Society Inc employed 10 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Mps Society Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, National Mps Society Inc generated $1.9m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.0% each year. All expenses for the organization totaled $2.1m during the year ending 12/2021. While expenses have increased by 6.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, National Mps Society Inc has awarded 36 individual grants totaling $1,665,571. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE SOCIETY FUNDED APPROXIMATELY 23 RESEARCH GRANTS DURING 2021 FOR THE PURPOSE OF FINDING TREATMENTS AND CURES FOR MPS AND RELATED DISEASES.


THE SOCIETY PROVIDED MEDICAL EQUIPMENT SCHOLARSHIPS, FUNERAL EXPENSE GRANTS, EDUCATION SCHOLARSHIPS, MEDICAL TRAVEL ASSISTANCE, AND SCHOLARSHIPS FOR THE PURPOSE OF PROVIDING FAMILY SUPPORT FOR PEOPLE AND THEIR FAMILIES WHO ARE IN SOME WAY AFFECTED BY MPS.


THE SOCIETY PROVIDED INFORMATION SERVICES AND EDUCATIONAL SUPPORT FOR AFFECTED FAMILIES (NEWSLETTERS, SYNDROME BOOKLETS, FACT SHEETS, WEBSITE, DIRECTORY) AND INCREASED PUBLIC AWARENESS OF THESE RARE GENETIC DISEASES (CONFERENCES & ADVOCACY).


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Board, Officers & Key Employees

Name (title)Compensation
Matthew Ellinwood
Cso
$148,500
Terri Klein
President &
$118,656
Steve Amy Holland
Vice Chairma
$0
Lynn Scott Hopkins
Treasurer
$0
Christine Tippett
Secretary
$0
Lisa Todd
Board Chairm
$0

Financial Statements

Statement of Revenue
Federated campaigns$4,807
Membership dues$3,300
Fundraising events$701,546
Related organizations$0
Government grants $101,103
All other contributions, gifts, grants, and similar amounts not included above$596,631
Noncash contributions included in lines 1a–1f $26,342
Total Revenue from Contributions, Gifts, Grants & Similar$1,407,387
Total Program Service Revenue$167,400
Investment income $108,120
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $114,753
Net Income from Fundraising Events $105,163
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,902,823

Grants Awarded

Over the last fiscal year, National Mps Society Inc has awarded $439,076 in support to 8 organizations.

Grant RecipientAmount

GREENWOOD GENETIC CENTER

Org PageRecipient Profile

Greenwood, SC

PURPOSE: MEDICAL RESEARCH

$100,000

UNIVERSITY OF MINNESOTA FOUNDATION

Org PageRecipient Profile

Minneapolis, MN

PURPOSE: MEDICAL RESEARCH

$99,686

IOWA STATE UNIVERSITY FOUNDATION

Org PageRecipient Profile

Ames, IA

PURPOSE: MEDICAL RESEARCH

$50,000

LUNDQUIST INSTITUTE FOR BIOMEDICALINNOVATION AT HARBOR-UCLA MEDICAL

Org PageRecipient Profile

Torrance, CA

PURPOSE: MEDICAL RESEARCH

$50,000

ICAHN SCHOOL OF MEDICINE AT MOUNTSINAI

Org PageRecipient Profile

New York, NY

PURPOSE: MEDICAL RESEARCH

$50,000

NATIONWIDE CHILDREN'S HOSPITAL

Org PageRecipient Profile

Columbus, OH

PURPOSE: MEDICAL RESEARCH

$45,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 12 grants that National Mps Society Inc has recieved totaling $58,624.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$22,089
American Endowment Foundation

Hudson, OH

PURPOSE: DISEASE/DISORDER

$10,000
Paypal Charitable Giving Fund

Washington, DC

PURPOSE: General Support

$9,841
The Community Foundation For Greater Atlanta Inc

Atlanta, GA

PURPOSE: DISEASES/DISORDERS/MEDICAL

$7,500
G B & Charlotte A Saunders Foundation Inc

Columbus, GA

PURPOSE: GENERAL DONATION

$3,500
The Duke Energy Foundation

Charlotte, NC

PURPOSE: MATCHING GIFTS

$2,216
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$1,360,954
Earnings$208,125
Admin Expense$14,212
Ending Balance$1,554,867

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