Cornelia De Lange Syndrome Foundation Inc
- Assets
- $3.4m
- Revenue
- $1.2m
- Investments
- $0.0
- Employees
- 12
- Location
- Avon, CT
- Founding
- 03/1982
- Data as of
- 12/2021
- EIN
- 06-1057497
Organization Overview
Cornelia De Lange Syndrome Foundation Inc is located in Avon, CT. The organization was established in 1982. According to its NTEE Classification (E80) the organization is classified as: Health (General & Financing), under the broad grouping of Health Care and related organizations. As of 12/2021, Cornelia DE Lange Syndrome Foundation Inc employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cornelia DE Lange Syndrome Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cornelia DE Lange Syndrome Foundation Inc generated $1.2m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.8% each year. All expenses for the organization totaled $921.4k during the year ending 12/2021. While expenses have increased by 3.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
FAMILY SUPPORT ORGANIZATION THAT EXISTS TO ENSURE EARLY AND ACCURATE DIAGNOSIS OF CDLS, PROMOTE RESEARCH INTO THE CAUSES AND MANIFESTATIONS, AND HELP PEOPLE WITH A DIAGNOSIS OF CDLS, AND OTHERS WITH SIMILAR CHARACTERISTICS, MAKE INFORMED DECISIONS THROUGHOUT THEIR LIVES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FAMILY SUPPORT PROGRAMS
PROFESSIONAL EDUCATION OUTREACH & AWARENESS
PUBLIC INFORMATION & EDUCATION
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Morrisette Royster Executive Dir. | Officer | 40 | $109,650 |
Mike Feehan Vice President | OfficerTrustee | 0 | $0 |
Katherina Nikzah-Terhune Vice President | OfficerTrustee | 0 | $0 |
Eric Johnson Treasurer | OfficerTrustee | 0 | $0 |
Mike Christie President | OfficerTrustee | 0 | $0 |
Nicholas Jackson Secretary | OfficerTrustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $288,021 |
| Related organizations | $0 |
| Government grants | $188,149 |
| All other contributions, gifts, grants, and similar amounts not included above | $639,404 |
| Noncash contributions included in lines 1a–1f | $8,755 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,115,574 |
| Total Program Service Revenue | $0 |
| Investment income | $25,288 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $29,266 |
| Net Income from Fundraising Events | $75,257 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,245,385 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $109,650 |
| Compensation of current officers, directors, key employees. | $7,270 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $495,895 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $13,077 |
| Payroll taxes | $47,921 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $14,659 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $58,052 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $6,404 |
| Insurance | $6,649 |
| All other expenses | $27,057 |
| Total functional expenses | $921,430 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $382,071 |
| Savings and temporary cash investments | $244,366 |
| Pledges and grants receivable | $266,680 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $2,578 |
| Prepaid expenses and deferred charges | $31,947 |
| Net Land, buildings, and equipment | $18,304 |
| Investments—publicly traded securities | $2,432,196 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $3,378,142 |
| Accounts payable and accrued expenses | $66,273 |
| Grants payable | $0 |
| Deferred revenue | $782 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $67,055 |
| Net assets without donor restrictions | $3,064,459 |
| Net assets with donor restrictions | $246,628 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,378,142 |
Grants Recieved
Over the last fiscal year, we have identified 15 grants that Cornelia De Lange Syndrome Foundation Inc has recieved totaling $125,858.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $46,261 |
American Legion Child Welfare Foundation Inc Indianapolis, IN PURPOSE: GENERAL SUPPORT | $26,500 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $15,350 |
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $10,550 |
Odyssey Group Foundation Stamford, CT PURPOSE: UNRESTRICTED GRANT FOR OPERATING COSTS | $10,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $5,404 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Massachusetts Mutual Employee Health Benefit Tr Springfield, MA | $6,593,525 | $93,603,894 |
Delta Dental Of Rhode Island Providence, RI | $133,512,428 | $64,453,283 |
International Union Of Operating Engineers Welfare Fund 478 Hamden, CT | $131,628,266 | $64,853,595 |
Dentcare Delivery Systems Inc Uniondale, NY | $23,820,779 | $55,088,779 |
Carepartners Of Connecticut Inc Canton, MA | $21,597,096 | $24,446,230 |
New York State United Teachers Member Benefits Catastrophe Major Latham, NY | $163,944,061 | $48,601,749 |
Retiree Health And Welfare Fund Of The Police Benevolent Association New York, NY | $171,668,298 | $54,323,145 |
Local 298 Health Benefit Fund I Valley Stream, NY | $21,565,304 | $24,797,848 |
Detectives Endowment Association Retirees Health Benefits Fund New York, NY | $3,766,379 | $20,182,671 |
F A Bartlett Tree Expert Co Veba Health Benefits Plan Stamford, CT | $425,363 | $16,893,698 |
Guardians Of The Sick Inc Brooklyn, NY | $5,970,531 | $15,096,609 |
Primary Care Development Corporation New York, NY | $131,968,263 | $17,167,926 |