Vhl Alliance Inc

Organization Overview

Vhl Alliance Inc is located in Boston, MA. The organization was established in 1993. According to its NTEE Classification (E20) the organization is classified as: Hospitals, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Vhl Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2022, Vhl Alliance Inc generated $1.1m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $980.2k during the year ending 06/2022. While expenses have increased by 5.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE: TO PROVIDE A SUPPORT NETWORK FOR PATIENTS & THEIR FAMILIES: TO EDUCATE & INFORM THE PUBLIC & THE MEDICAL COMMUNITY ON CURRENT DEVELOPMENTS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE VHL ALLIANCE PROVIDES A QUARTERLY NEWSLETTER, ON-LINE SERVICES, TELEPHONE OUTREACH AND OTHER SERVICES FOR VHL PATIENTS & FAMILY MEMBERS TO BE ABLE TO COMMUNICATE CURRENT VHL RESEARCH & MEDICAL INFORMATION. THE VHL ALLIANCE ALSO PROVIDES EDUCATIONAL MATERIAL INCLUDING PATIENT HANDBOOKS AND BROCHURES ON LIVING WITH VHL DISEASE, THE VHL ALLIANCE ALSO HOLDS MEDICAL/RESEARCH SYMPOSIUMS, AN ANNUAL CONFERENCES & RECURRING SEMINARS, AND MAINTAINS EDUCATION & RESEARCH PROGRAMS SUCH AS THE TISSUE BANK AND THE CENTRAL VHL DATABASE.


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Board, Officers & Key Employees

Name (title)Compensation
Seth Horwitz
Treasurer & Director
$0
Doug Karle
Director
$0
Camron King
Board Chair
$0
Emily Billcheck
Secretary & Director
$0
Cary Schwanitz
Director
$0
Stacy Lloyd MPH
Vice Chair
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$161,449
Related organizations$0
Government grants $66,392
All other contributions, gifts, grants, and similar amounts not included above$797,586
Noncash contributions included in lines 1a–1f $5,205
Total Revenue from Contributions, Gifts, Grants & Similar$1,025,427
Total Program Service Revenue$42,085
Investment income $3,556
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,073,740

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Vhl Alliance Inc has recieved totaling $41,345.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$23,230
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$10,150
Chew Foundation

Ridgeland, MS

PURPOSE: PROMOTION OF CHARITABLE WORKS

$5,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$2,890
Pfizer Foundation Inc

New York, NY

PURPOSE: MATCHING GIFTS

$50
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$25
View Grant Recipient Profile

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