Vhl Alliance Inc
- Assets
- $2.3m
- Revenue
- $1.5m
- Investments
- $0.0
- Employees
- 6
- Location
- Boston, MA
- Founding
- 06/1993
- Data as of
- 06/2024
- EIN
- 04-3180414
Organization Overview
Vhl Alliance Inc is located in Boston, MA. The organization was established in 1993. According to its NTEE Classification (E20) the organization is classified as: Hospitals, under the broad grouping of Health Care and related organizations. As of 06/2024, Vhl Alliance Inc employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Vhl Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2024, Vhl Alliance Inc generated $1.5m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 8.5% each year. All expenses for the organization totaled $962.8k during the year ending 06/2024. While expenses have increased by 3.7% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE: TO PROVIDE A SUPPORT NETWORK FOR PATIENTS & THEIR FAMILIES: TO EDUCATE & INFORM THE PUBLIC & THE MEDICAL COMMUNITY ON CURRENT DEVELOPMENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE VHL ALLIANCE PROVIDES A QUARTERLY NEWSLETTER, ON-LINE SERVICES, TELEPHONE OUTREACH AND OTHER SERVICES FOR VHL PATIENTS & FAMILY MEMBERS TO BE ABLE TO COMMUNICATE CURRENT VHL RESEARCH & MEDICAL INFORMATION. THE VHL ALLIANCE ALSO PROVIDES EDUCATIONAL MATERIAL INCLUDING PATIENT HANDBOOKS AND BROCHURES ON LIVING WITH VHL DISEASE, THE VHL ALLIANCE ALSO HOLDS MEDICAL/RESEARCH SYMPOSIUMS, AN ANNUAL CONFERENCES & RECURRING SEMINARS, AND MAINTAINS EDUCATION & RESEARCH PROGRAMS SUCH AS THE TISSUE BANK AND THE CENTRAL VHL DATABASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
William Engel Director | Trustee | 5 | $0 |
Kwame Garrett Price Director | Trustee | 5 | $0 |
Daffodil Baez Director | Trustee | 5 | $0 |
Stacy Yates Director | Trustee | 5 | $0 |
Rohan Nirody Vice Chairperson | Trustee | 5 | $0 |
Michael Van Loon Director | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,234,173 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,234,173 |
| Total Program Service Revenue | $197,390 |
| Investment income | $97,272 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,537,754 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $100,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $50,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $102,000 |
| Compensation of current officers, directors, key employees. | $10,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $288,968 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $30,451 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $6,250 |
| Fees for services: Accounting | $14,175 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $2,186 |
| Advertising and promotion | $0 |
| Office expenses | $7,049 |
| Information technology | $16,065 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $36,700 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $4,889 |
| All other expenses | $28,042 |
| Total functional expenses | $962,808 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $62,085 |
| Savings and temporary cash investments | $456,141 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $12,762 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $1,785,180 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,316,168 |
| Accounts payable and accrued expenses | $10,319 |
| Grants payable | $208,333 |
| Deferred revenue | $3,965 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $222,617 |
| Net assets without donor restrictions | $1,743,551 |
| Net assets with donor restrictions | $350,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,316,168 |
Grants Awarded
Over the last fiscal year, Vhl Alliance Inc has awarded $166,667 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO PURPOSE: VHL RELATED PHEOCHROMOCYTOMAS STUDY | $50,000 |
UNIVERSITY OF UTAH PURPOSE: NEUROFIBROMIN STABILIZATION AS A TREATMENT STRATEGY FOR VHL DISEASE | $50,000 |
UNIVERSITY OF NOTRE DAME PURPOSE: SYNTHETIC ESSENTIALITY OF TRAIL/TNFSF10 IN VHL-DEFICIENT RENAL CELL CARCINOMA | $50,000 |
MD ANDERSON CANCER CENTER PURPOSE: IMMUNE MODULATION IN VON HIPPELLINDAU DISEASE BY TARGETING THE DNA DAMAGE RESPONSE NETWORK | $16,667 |