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Specifically Named Diseases

Nonprofit OrganizationsSpecifically Named Diseases

Specifically Named Diseases organizations account for 930 organizations in the United States. In aggregate, these organizations generate $951m in revenue and employ 4.4k individuals.

930

Active Organizations

$951.4 Million

Annual Revenue

4 Thousand

Employees in Sector

$1.7 Billion

Controlled Assets

Explore Nonprofits in the Specifically Named Diseases Sector

Association Of Immunization Managers

Rockville, MD

Assets: $1m

Revenue: $3m

MISSION:

THE ASSOCIATION OF IMMUNIZATION MANAGERS AIM WAS CREATED IN 1999 TO ENABLE IMMUNIZATION MANAGERS TO WORK TOGETHER TO EFFECTIVELY PREVENT AND CONTROL VACCINE-PREVENTABLE DISEASES AND IMPROVE IMMUNIZATION COVERAGE IN THE UNITED STATES AND ITS TERRITORIES.

Pink Fund Inc

Bingham Farms, MI

Assets: $1m

Revenue: $2m

MISSION:

THE PINK FUND PROVIDES FINANCIAL ASSISTANCE TO BREAST CANCER PATIENTS

Imagine A Way

Leander, TX

Assets: $1m

Revenue: $735k

MISSION:

TO SUPPORT FAMILIES OF CHILDREN WITH AUTISM WHO ARE IN NEED OF, BUT CANNOT AFFORD, CRITICAL THERAPEUTIC SERVICES.

Camp Ho Mita Koda Foundation

Newbury, OH

Assets: $1m

Revenue: $595k

MISSION:

OPERATING A SUMMER RESIDENTIAL AND DAY CAMP FOR CHILDREN WITH (CONTINUED ON SCHEDULE O)CHRONIC ILLNESS, MOST COMMONLY TYPE 1 DIABETES.

Hidradenitis Suppurativa Foundation Inc

Cary, NC

Assets: $1m

Revenue: $679k

MISSION:

THE HIDRADENITIS SUPPURATIVA FOUNDATION (HSF) IS A NONPROFIT PUBLIC BENEFIT CORPORATION DEDICATED TO IMPROVING THE QUALITY OF LIFE AND QUALITY OF CARE FOR INDIVIDUALS AND FAMILIES AFFECTED BY HIDRADENITIS SUPPURATIVA (HS). THE HSF FOSTERS AND ENCOURAGES WORLDWIDE RESEARCH BY DEVELOPING AND SUPPORTING AN INTERDISCIPLINARY FAMILY OF SCIENTISTS AND PHYSICIANS DEVOTED TO STUDYING THE MOLECULAR AND CELLULAR BASIS OF HS, IN ORDER TO DEVELOP AND DELIVER MORE EFFECTIVE FORMS OF TREATMENT AND PREVENTATIVE MEASURES FOR THOSE WITH THIS DEBILITATING AND EMINENTLY CHRONIC DISEASE.

Angioma Alliance

Charlottesville, VA

Assets: $1m

Revenue: $1m

MISSION:

THE MISSION OF ANGIOMA ALLIANCE IS TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE.

John W Burns Trust 5211 01 8

Dallas, TX

Assets: $1m

Revenue: $233k

MISSION:

The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.

Prevention Links

Roselle, NJ

Assets: $1m

Revenue: $5m

MISSION:

PREVENTION LINKS' MISSION IS TO FOSTER, HEALTHY, SUSTAINABLE COMMUNITIES BY EMPOWERING PEOPLE THROUGH EDUCATION, COLLABORATION AND LINKAGES TO RESOURCES. PREVENTION LINKS TAKES A LEADERSHIP ROLE IN THE PREVENTION OF DRUGS, ALCOHOL, TOBACCO AND RELATED ISSUES. WITH COMMUNITY BEING DEFINED AS ANY ENVIRONMENT WHERE PEOPLE LIVE, WORK, OR LEARN, THE GOAL OF PREVENTION LINKS IS TO PULL TOGETHER ALL AVAILABLE RESOURCES TO ELIMINATE THE DELETERIOUS EFFECTS OF DRUGS, ALCOHOL, VIOLENCE, AND INADEQUATE EDUCATIONAL AND HEALTH INSTITUTIONS IN OUR COMMUNITIES.

Learning Disabilities Association Of Central New York Inc

Syracuse, NY

Assets: $1m

Revenue: $2m

MISSION:

THIS ORGANIZATION IS A MULTI PURPOSE CORPORATION SERVING INDIVIDUALS AND FAMILIES IN THE GREATER SYRACUSE AREA. IT PROVIDES SEVERAL TYPES OF SERVICES FOR THE LEARNING DISABLED TO PROMOTE THE GENERAL WELFARE OF LEARNING DISABLED, THEIR FAMILIES AND THOSE PROFESSIONALS WHO WORK WITH THEM.

William J Burns Foundation Inc

New York, NY

Assets: $1m

Revenue: $201k

MISSION:

The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.

Care Support Center Inc

Huntigdon Vly, PA

Assets: $1m

Revenue: $13k

MISSION:

THE MISSION IS TO PROVIDE DIABETES EDUCATION TO MEDICALLY UNDERSERVED PEOPLE

Diabetes Association Of Atlanta Inc

Atlanta, GA

Assets: $1m

Revenue: $311k

MISSION:

TO PROMOTE COMMUNITY AWARENESS AND HEALTHY LIVING TO PREVENT AND AND MANAGE DIABETES THROUGH INNOVATIVE COMMUNITY PROGRAMS.

Vascular Birthmarks Foundation Inc

Latham, NY

Assets: $1m

Revenue: $620k

MISSION:

PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH

Ald Connect Inc

Middleton, MA

Assets: $1m

Revenue: $461k

MISSION:

TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION

American Association Of Endocrine Surgeons Foundation

Lexington, KY

Assets: $981k

Revenue: $160k

MISSION:

TO PROMOTE RESEARCH AND EDUCATION IN THE FIELD OF ENDOCRINE SURGERY, TO ADVANCE THE SCIENCE AND ART OF ENDOCRINE SURGERY AND TO MAINTAIN THE HIGHEST STANDARDS IN CLINICAL PRACTICE.

Project Lyme

New York, NY

Assets: $969k

Revenue: $575k

MISSION:

PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.

Friendship Club

Santa Fe, NM

Assets: $967k

Revenue: $158k

MISSION:

OUR MISSION IS TO PROVIDE AND MAINTAIN A MULTI-USE COMMUNITY CENTER THAT PROMOTES ACTIVITIES AND EVENTS FOCUSING ON MENTAL, SPIRITUAL AND PHYSICAL RECOVERY. WE PROVIDE AN INVITING, SUPPORTIVE ENVIRONMENT WHERE PEOPLE IN RECOVERY CAN HEAL AND HELP ONE ANOTHER.

Diabetessisters

Raleigh, NC

Assets: $953k

Revenue: $466k

MISSION:

TO IMPROVE THE HEALTH AND QUALITY OF LIFE OF WOMEN WITH AND AT RISK OF DEVELOPING DIABETES.

Fund For Myeloma Education And Research Inc

Needham, MA

Assets: $922k

Revenue: $98

MISSION:

IS ORGANIZED & OPERATED TO PROMOTE PUBLIC HEALTH THROUGH THE FURTHERANCE OF RESEARCH RELATING TO THE CAUSES TREATMENTS AND POSSIBLE CURES FOR MYELOMA & RELATED CONDITIONS.THIS IS ACCOMPLISED PRIMARILY BY SUPPORTING WORLDWIDE RESEARCH INITIATIVES,THE SHARING OF INFORMATION & PROMOTING COLLABORATION BETWEEN RESEARCHERS & PRACTITIONERS.

Mitoaction Inc

Novi, MI

Assets: $896k

Revenue: $398k

MISSION:

TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE.