Fanconi Anemia Research Fund Inc

Organization Overview

Fanconi Anemia Research Fund Inc is located in Eugene, OR. The organization was established in 1994. According to its NTEE Classification (H90) the organization is classified as: Medical Disciplines Research, under the broad grouping of Medical Research and related organizations. As of 12/2020, Fanconi Anemia Research Fund Inc employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fanconi Anemia Research Fund Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2020, Fanconi Anemia Research Fund Inc generated $4.1m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 2.9% each year. All expenses for the organization totaled $2.0m during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.

Since 2014, Fanconi Anemia Research Fund Inc has awarded 46 individual grants totaling $7,514,392. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2020

Describe the Organization's Mission:

Part 3 - Line 1

TO FIND EFFECTIVE TREATMENTS AND A CURE FOR.FANCONI ANEMIA AND TO PROVIDE.EDUCATION AND.SUPPORT SERVICES TO.FAMILIES. WORLD WIDE

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH. SINCE FARF WAS FOUNDED IN 1989, WE HAVE SUPPORTED MORE THAN $24 MILLION IN.RESEARCH, SUPPORTING ... MORE THAN 230 RESEARCH.GRANTS AT MORE THAN 74. CENTERS WORLDWIDE .. EVERY YEAR WE. HOST A.SCIENTIFIC SVMPOSIUM GATHERING OVER 200 FANCONI ANEMIA (FA) SCIENTISTS,.RESEARCHERS,.AND DOCTORS FROM AROUND THE WORLD TO PRESENT RESULTS. FROM THEIR RESEARCH AND TO. COLLABORATE WITH OTHERS IN THE.FIELD. IN ADDITION, WE. HOLD SMALL WORKSHOPS ON AREAS OF SPECIFIC INTEREST, SUCH AS HEAD AND NECK SQUAMOUS CELL CARCINOMA,.IDENTIFICATION.OFNEW DRUSG TO TREAT PATIENTS, AND.GENE THERAPY.


FAMILY SUPPORT AND EDUCATION SERVICES. CURRENTLY, THERE ARE NEARLY 1,000 FAMILIES. WORLDWIDE THAT ARE REGISTERED WITH. OUR ORGANIZATION. AND AN UNDETERMINED NUMBER OF NEWLY DIAGNOSED PATIENTS. WHEN. FACED WITH THIS DEVASTATING DIAGNOSIS, THEY LOOK TO FARF FOR SUPPORT .. WE.PRODUCE_INFORMATIONAL PUBLICATIONS, INCLUDING.OUR HANDBOOK."GUIDELINES FOR DIAGNOSIS AND.MANAGEMENT",.A FAMILY DIRECTORY, AND A RESOURCE GUIDE USING.ALL TREATMENT CENTERS AND DOCTORS WHO WORK FOR.FA .. WE ALSO ORGANIZE.A WEEKLONG.CAMP FOR.FAMILIES AFFECTED BY FA, WHERE WE BRING SCIENTISTS AND CLINICIANS TO PRESENT THE LATEST RESEARCH AND TREATMENT WE INCLUDE.SUPPORT GROUPS.FOR PARENTS AND PATIENTS,.RECREATIONAL ACTIVITIES FOR CHILDREN,


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Board, Officers & Key Employees

Name (title)Compensation
Mark Quinlan
Executive Director
$124,200
Isis Sroka
Scientific Director
$111,395
Orion Marx
Vice Presdident
$0
Jhn Connelly
Secretary
$0
Andre Hessels
President
$0
Lynn Frohnmayer
Founder
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$2,860,743
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$2,860,743
Total Program Service Revenue$0
Investment income $638,552
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $4,056,234

Grants Awarded

Over the last fiscal year, Fanconi Anemia Research Fund Inc has awarded $1,376,893 in support to 8 organizations.

Grant RecipientAmount

UNIVERSITY OF PENSYLVANIA

|

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$250,000

GEORGETOWN UNIVERSITY

Org PageRecipient Profile

Washington, DC

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$250,000

UNIVERSITY OF MINNESOTA

Org PageRecipient Profile

Minneapolis, MN

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$250,000

UNIVERSITY OF MINNESOTA

Org PageRecipient Profile

Minneapolis, MN

|

$250,000

ROCKEFELLER UNIVERSITY

Org PageRecipient Profile

New York, NY

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$150,589

OREGON HEALTH SCIENCES UNIVERSITY

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$97,067
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 2 grants that Fanconi Anemia Research Fund Inc has recieved totaling $5,000.

Awarding OrganizationAmount
Lamoreaux Family Foundation

Sisters, OR

PURPOSE: MEDICAL RESEARCH ON DISEASE

$4,000
Giustina Foundation

Eugene, OR

PURPOSE: RESEARCH AND FAMILY SUPPORT

$1,000
View Grant Recipient Profile

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