Arizona Hemophilia Association Inc
- Assets
- $1.9m
- Revenue
- $1.1m
- Investments
- $0.0
- Employees
- 15
- Location
- Phoenix, AZ
- Founding
- 09/1973
- Data as of
- 06/2022
- EIN
- 86-0209257
Organization Overview
Arizona Hemophilia Association Inc, operating under the name Arizona Bleeding Disorders, is located in Phoenix, AZ. The organization was established in 1973. As of 06/2022, Arizona Bleeding Disorders employed 15 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Arizona Bleeding Disorders is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Arizona Bleeding Disorders generated $1.1m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (6.5%) each year. All expenses for the organization totaled $995.4k during the year ending 06/2022. As we would expect to see with falling revenues, expenses have declined by (10.3%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE AHA IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR THOSE LIVING WITH CHRONIC BLEEDING DISORDERS WHILE ADVOCATING FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
COMMUNITY EDUCATION - PROMOTE COMMUNITY AWARENESS THROUGH VARIOUS CONFERENCES AND OTHER MEDIA:1. VIRTUAL NORTH AMERICAN CAMPING CONFERENCE FOR HEMOPHILIA ORGANIZATIONS - ANNUAL CONFERENCE FOR 200 NATIONAL AND INTERNATIONAL ATTENDEES TO PROMOTE AND ENHANCE THE SUMMER CAMP EXPERIENCE OF CHILDERN WITH BLEEDING DISORDERS.2. VIRTUAL ANNUAL STATEWIDE EDUCATIONAL SYMPOSIUM - BRINGS TOGETHER THOSE WITH BLEEDING DISORDERS AND THEIR FAMILIES FROM ACROSS THE STATE TO PROVIDE EDUCATION TO HELP THEM BETTER MANAGE THIS CHRONIC CONDITION.3. CONDUCTED AN ADVOCACY SUMMIT CONFERENCE VIA ZOOM TO PROMOTE AWARENESS WITHIN THE BLEEDING DISORDER COMMUNITY AND THE GENERAL PUBLIC.4. CONDUCTED A VIRTUAL HISPANIC HERITAGE DAY WITH THE HISPANIC POPULATION AFFECTED BY BLEEDING DISORDERS TO EDUCATE AND SUPPORT THEIR UNIQUE STRUGGLES IN THEIR NATIVE LANGUAGE.5. CONDUCTED A (NOW) CONFERENCE (NATIONAL EDUCATIONAL CONFERENCE FOR INDIVIDUALS AND FAMILIES WHO ARE LIVING WITH VONWILLEBRANDS).
HEALTH CENTER - ADULT HEALTH CENTER ESTABLISHED TO PROVIDE PRIMARY CARE AND BLEEDING DISORDERS CARE TO TREAT THE WHOLE PERSON. IT IS OPEN TO THOSE WITH BLEEDING DISORDERS AND THEIR ADULT FAMILY MEMBERS. AHA PURCHASED A BUILDING AND RENOVATED IT FOR THE HEALTH CENTER. THE PROGRAM WAS DISCONTINUED IN SEPTEMBER 2021 AND THE BUIDLING WAS SUBSEQUENTLY SOLD.
COMMUNITY SUPPORT PROGRAMS - PROVIDE EDUCATION AND SUPPORT GROUP MEETINGS INCLUDING:1. QUARTERLY MEETINGS FOR THE COMMUNITY AS A WHOLE THAT INCLUDE EDUCATION, PHARMACEUTICAL INFORMATION, AND TIME FOR INTERACTION.2. EDUCATIONAL MEETINGS THAT INCLUDED: A. LEARNING TO DISCLOSE YOUR BLEEDING DISORDER IN A SAFE WAY. B. UNDERSTANDING INSURANCE AND OPTIONS AVAILABLE TO OUR COMMUNITY. C. HOW TO INTERACT WITH LEGISLATORS TO PROMOTE INSURANCE REFORM. D. NUTRITION AND EXERCISE - HOW TO IMPROVE QUALITY OF LIFE. E. MENTAL HEALTH - HOW TO IMPROVE QUALITY OF LIFE. F. EDUCATIONAL MEETINGS FOR SPANISH-SPEAKING COMMUNITY. G. ON-GOING PROGRAM FOR AT-RISK YOUTH.
FAMILY ASSISTANCE - PROVIDE EMERGENCY AND TEMPORARY FINANCIAL ASSISTANCE TO HEMOPHILIA PATIENTS AND THEIR FAMILIES. LIFELINE- PROVIDES ASSISTANCE FOR MEDICAL BILLS, INSURANCE PREMIUMS AND COBRA PAYMENT ASSISTANCE FOR THE COMMUNITY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Chastity Fermoile Executive Director | Officer | 40 | $121,268 |
Ellen Owens-Karcsay Vice-President | OfficerTrustee | 2 | $0 |
Victor I Alonzo Treasurer | OfficerTrustee | 2 | $0 |
Karin Gerlach Secretary | OfficerTrustee | 2 | $0 |
Al Schmeiser Chair | OfficerTrustee | 2 | $0 |
William Kirschner President | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $38,465 |
| Related organizations | $0 |
| Government grants | $204,463 |
| All other contributions, gifts, grants, and similar amounts not included above | $490,311 |
| Noncash contributions included in lines 1a–1f | $850 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $733,239 |
| Total Program Service Revenue | $11,823 |
| Investment income | $75,284 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | -$10,970 |
| Net Gain/Loss on Asset Sales | $321,178 |
| Net Income from Fundraising Events | $5,208 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,135,762 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $13,443 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $82,279 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $232,868 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $28,961 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $22,499 |
| Fees for services: Accounting | $11,031 |
| Fees for services: Lobbying | $60,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $114,856 |
| Advertising and promotion | $6,497 |
| Office expenses | $0 |
| Information technology | $11,482 |
| Royalties | $0 |
| Occupancy | $42,451 |
| Travel | $90,943 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $29,632 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $16,119 |
| Insurance | $58,210 |
| All other expenses | $80,185 |
| Total functional expenses | $995,371 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $276,028 |
| Savings and temporary cash investments | $904,400 |
| Pledges and grants receivable | $21,600 |
| Accounts receivable, net | $2,000 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $51,246 |
| Net Land, buildings, and equipment | $636,451 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $5,748 |
| Total assets | $1,897,473 |
| Accounts payable and accrued expenses | $33,627 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $1,194 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $590,348 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $625,169 |
| Net assets without donor restrictions | $489,981 |
| Net assets with donor restrictions | $782,323 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,897,473 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Arizona Hemophilia Association Inc has recieved totaling $18,554.
| Awarding Organization | Amount |
|---|---|
American Endowment Foundation Hudson, OH PURPOSE: GENERAL OPERATING SUPPORT | $10,000 |
Hemophilia Alliance Foundation Lansdale, PA PURPOSE: PROMOTE HEMOPHILIA | $8,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $554 |
Endowment Analysis
| Beg. Balance | $607,315 |
| Net Contributions | $289,000 |
| Other Expense | $219,919 |
| Ending Balance | $676,396 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Cares Community Health Sacramento, CA | $71,949,456 | $81,896,578 |
Susan G Komen Breast Cancer Foundation Dallas, TX | $193,189,248 | $87,745,658 |
Benevolent Healthcare Foundation Centennial, CO | $130,477,128 | $61,228,597 |
Desert Aids Project Palm Springs, CA | $65,856,299 | $72,247,945 |
Pancreatic Cancer Action Network Inc Manhattan Beach, CA | $68,159,698 | $52,930,843 |
Federation Of State Medical Boards Of The United States Inc Euless, TX | $83,006,184 | $61,293,815 |
American Academy Of Ophthalmology Inc San Francisco, CA | $120,788,261 | $63,345,501 |
San Francisco Aids Foundation San Francisco, CA | $36,045,464 | $48,968,255 |
Barrow Neurological Foundation Phoenix, AZ | $175,375,850 | $31,938,606 |
Travis Association For The Blind Austin, TX | $78,598,900 | $36,471,837 |
Houston Area Community Services Inc Houston, TX | $15,653,744 | $35,513,842 |
United Cerebral Palsy Spastic Childrens Foundation Woodland Hills, CA | $11,510,499 | $31,597,393 |