Hunters Cmt4b3 Research Foundation Inc

Organization Overview

Hunters Cmt4b3 Research Foundation Inc is located in Scarsdale, NY. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hunters Cmt4b3 Research Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Hunters Cmt4b3 Research Foundation Inc generated $352.7k in total revenue. This organization has experienced exceptional growth, as over the past 3 years, it has increased revenue by an average of 46.9% each year . All expenses for the organization totaled $306.3k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO FUND SCIENTIFIC RESEARCH LEADING TO THE DISCOVERY, DEVELOPMENT AND CLINICAL APPLICATIONS FOR THERAPEUTIC TREATMENTS AND CURES FOR CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3 (CMT 4B3), AND TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT4B3.

Describe the Organization's Program Activity:

Part 3 - Line 4a

CMT4B3 AWARDS RESEARCH FELLOWSHIP AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING AND ITS SCIENTIFIC ADVISORY BOARD TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF ITS SCIENTIFIC ADVISORY BOARD TO CAREFULLY OVERSEE AND REVIEW THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING. THE SAB EVALUATES EACH PROPOSAL BASED ON THE EXCELLENCE OF THE INVESTIGATOR, THE WORK PLAN AND THE PROPOSALS' ABILITY TO BE TRANSLATED INTO TREATMENTS FOR PEOPLE WITH CMT4B3. APPLICATIONS ARE REVIEWED ON A ROLLING BASIS. THE LAW FIRM OF KATTEN MUCHIN ROSENMAN, LLP WRITES THE GRANT AGREEMENT CONTRACTS WITH THESE RESEARCHERS, UNIVERSITIES, OR ACADEMIC INSTITUTIONS.THE BOARD MEMBERS, IRIS SCHULTZ AND ROBIN SCHULTZ, ATTEND THE YEARLY MEETING OF THE PERIPHERAL NERVE SOCIETY. ALL EXPENSES RELATED TO ATTENDING THE CONFERNCE ARE PERSONALLY COVERED BY THE BOARD MEMBERS. CMT4B3 IS LISTED AS A PATIENT RESOURCE OF THE PNS. ATTENDANCE AT THE PNS GIVES BOARD MEMBERS THE ABILITY TO MEET WITH AND EXCHANGE IDEAS WITH INTERNATIONAL RESERACHERS OF CMT AND CMT4B3.CMT4B3 MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3. THE WEBSITE CONTAINS LINKS TO OUR RESEARCH PROJECTS, A NEW PATIENT PORTAL TO JOIN OUR NEUROGENETICS REGISTRY AND THE ABILITY TO JOIN OUR NATURAL HISTORY STUDIES. CMT4B3 PRODUCES EDUCATIONAL MATERIALS DISSEMINATED AT CONFERENCES AND AT PUBLIC EVENTS TO RAISE AWARENESS. CMT4B3 MAINTAINS CLIENT MANAGEMENT SOFTWARE. IT RETAINS ACCOUNTING SERVICES. CMT4B3 FOUNDATION IS COMPOSED OF VOLUNTEERS WHO WORK FROM HOME AND DO NOT TAKE ANY SALARIES.


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Board, Officers & Key Employees

Name (title)Compensation
Iris Schultz
President
$0
Brett Schultz
Vice President
$0
Robin Schultz
Treasurer
$0
Amy C Schwartz
Director
$0
Mandeep Kaur Chohan
Director
$0
Lianne C Cappo
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$348,400
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$348,400
Total Program Service Revenue$0
Investment income $4,265
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $352,665

Grants Awarded

Over the last fiscal year, Hunters Cmt4b3 Research Foundation Inc has awarded $235,417 in support to 5 organizations.

Grant RecipientAmount

UNIVERSITY OF MIAMI

PURPOSE: DEVELOPING HUMAN PLATFORMS FOR THERAPY DEVELOPMENTS

$100,384

UNIVERSITY OF MIAMI

PURPOSE: MTMRS MINIGENE CONSTRUCTIONS

$45,364

NEUMOURS CHILDREN HOSPITAL

PURPOSE: PROJECT:MOTOR NEURON DYSFUNCTION

$32,000

NATIONWIDE CHILDREN'S HOSPITAL

Org PageRecipient Profile

Columbus, OH

PURPOSE: DEVELOPMENT OF SPLIT-VECTOR AAV APPROACHES FOR CMT4B3

$31,234

THE JACKSON LABORATORY

Org PageRecipient Profile

Bar Harbor, ME

PURPOSE: EXAMINING SBF1 IN MUTANT MICE FOR RELEVANT PHENOTYPES

$26,435
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Hunters Cmt4b3 Research Foundation Inc has recieved totaling $2,000.

Awarding OrganizationAmount
The Retelny Family Foundation

Scarsdale, NY

PURPOSE: GENERAL OPERATIONS

$2,000
View Grant Recipient Profile

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