American Syringomyelia Alliance Project Inc

Organization Overview

American Syringomyelia Alliance Project Inc, operating under the name American Syringomyelia & Chiari Alliance Project Inc, is located in Longview, TX. The organization was established in 1989. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 05/2022, American Syringomyelia & Chiari Alliance Project Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. American Syringomyelia & Chiari Alliance Project Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 05/2022, American Syringomyelia & Chiari Alliance Project Inc generated $1.2m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 17.8% each year . All expenses for the organization totaled $346.8k during the year ending 05/2022. While expenses have increased by 1.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, American Syringomyelia & Chiari Alliance Project Inc has awarded 24 individual grants totaling $596,741. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO PROVIDE SUPPORT FOR PERSONS AFFECTED BY SYRINGOMYELIA AND CHIARI MALFORMATION WHILE RAISING FUNDS TO CONDUCT RESEARCH FOR A CURE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

ASAP WORKS TOWARD ACCOMPLISHING ITS MISSION BY PROVIDING SUPPORT AND EDUCATION, INCREASING AWARENESS, EARLY IDENTIFICATION OF PATIENTS AND UNDERSTANDING OF SYMPTOMS, CAUSE AND MANAGEMENT OF THE DISORDERS. WE ACCOMPLISH THIS THROUGH NEWSLETTERS, WEBSITE, ANNUAL MEDICAL CONFERENCE, SUPPORT GROUP MEETINGS, AND WEBINARS.


ASAP WORKS TOWARD ACCOMPLISHING ITS MISSION BY FUNDING RESEARCH. ASAPS GOALS INCLUDE INCREASING PUBLIC AWARENESS OF THE EXISTENCE OF THE DISORDER AND ITS DEVASTATING EFFECTS FINANCIALLY SUPPORTING RESEARCH EFFORTS AND RAISING FUNDS TO FIND ALL CAUSES, TO DEVELOP NEW TREATMENTS AND TO IMPROVE EXISTING TREATMENTS COORDINATING THE EFFORTS OF ORGANIZATIONS WORKING TOWARDS IMPROVING THE LIVES OF PEOPLE WITH SYRINGOMYELIA AND/OR CHIARI


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Board, Officers & Key Employees

Name (title)Compensation
Patrice Schaublin
Executive Director
$65,735
Michele Raye
Secretary
$0
Eric Berning
President
$0
Annie Chapman
Treasurer
$0
Brian Dlouhy MD
Director
$0
Richard Simon
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$160
Fundraising events$40,000
Related organizations$0
Government grants $39,563
All other contributions, gifts, grants, and similar amounts not included above$76,405
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$156,128
Total Program Service Revenue$0
Investment income -$17,894
Tax Exempt Bond Proceeds $0
Royalties $1,065,799
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $7,012
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $344
Miscellaneous Revenue$0
Total Revenue $1,211,738

Grants Awarded

Over the last fiscal year, American Syringomyelia Alliance Project Inc has awarded $80,123 in support to 3 organizations.

Grant RecipientAmount

GLOBAL NEUROSCIENCES INSTITUTE

PURPOSE: Medical Research

$39,340

STANFORD SCHOOL OF MEDICINE

Org PageRecipient Profile

Redwood City, CA

PURPOSE: Medical Research

$34,117

UNIVERSITY OF UTAH

Org PageRecipient Profile

Salt Lake City, UT

PURPOSE: Medical Research

$6,666
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 5 grants that American Syringomyelia Alliance Project Inc has recieved totaling $26,512.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$13,601
Network For Good Inc

Washington, DC

PURPOSE: UNRESTRICTED

$6,208
Berger Family Foundation Inc

New York, NY

PURPOSE: FOR CHARITABLE PURPOSE OF ORGANIZATION

$5,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,652
Westfield Insurance Foundation

Westfield Center, OH

PURPOSE: GENERAL DONATION

$51
View Grant Recipient Profile

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