Epilepsy Foundation Of America

Organization Overview

Epilepsy Foundation Of America, operating under the name Epilepsy Foundation, is located in Bowie, MD. The organization was established in 1959. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Epilepsy Foundation employed 111 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2022, Epilepsy Foundation generated $21.9m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $17.7m during the year ending 06/2022. While expenses have increased by 3.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Epilepsy Foundation has awarded 174 individual grants totaling $13,736,297. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

WE IMPROVE AND SAVE LIVES THROUGH COMMUNITY SERVICES, EDUCATION, ACCESS TO CARE, AND RESEARCH.

Describe the Organization's Program Activity:

Part 3 - Line 4a

ADVOCACY FOR INDIVIDUALS, FAMILIES AND COMMUNITIES - THE FOUNDATION IS ON THE FRONT LINES HELPING ENSURE ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURES, AND THEIR FAMILIES AND COMMUNITIES, RECEIVE THE BEST POSSIBLE SERVICES AND CARE. THE FOUNDATION DEVELOPS NATIONWIDE PROGRAMS AVAILABLE THROUGH ITS NETWORK OF NEARLY 50 CHAPTERS AND AFFILIATES AND ALSO ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND ADULTS IN IMPROVING THEIR QUALITY OF LIFE. THE FOUNDATION ALSO HAS PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IN IMPROVING OVERALL WELLNESS. THE PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS.


PUBLIC HEALTH, EDUCATION AND AWARENESS - THE FOUNDATION LEADS THE FIGHT TO END EPILEPSY BY CREATING AWARENESS THROUGH NATIONAL MEDIA OUTREACH WITH TRADITIONAL AND DIGITAL CHANNELS INCLUDING EPILEPSY.COM AND SOCIAL MEDIA AND THROUGH THE DIRECT MAIL PROGRAM WHICH SERVES THE DUAL PURPOSE OF RAISING FUNDS FOR THE ORGANIZATION AND INCREASING AWARENESS OF THEFOUNDATION'S CAUSE. THE FOUNDATION EDUCATES ABOUT SEIZURE RECOGNITION AND FIRST AID, EMPHASIZING THE IMPORTANCE OF EARLY AND ACCURATE DIAGNOSIS, WHEN TO SEEK SPECIALTY CARE, AND PURSUIT OF WELLNESS AND BEST QUALITY OF LIFE. THE FOUNDATION EDUCATES THROUGH ENGAGEMENT WITHMEDIA SOURCES, PARTNERSHIPS WITH OTHER NON-PROFIT, PROFESSIONAL AND GOVERNMENT ORGANIZATIONS. THE FOUNDATION'S EPILEPSY LEARNING HEALTHCARE SYSTEM NETWORK IS A PUBLIC HEALTH INITIATIVE TO DRIVE QUALITY IMPROVEMENT AND HEALTH SERVICES RESEARCH TO IMPROVE OUTCOMES FOR PEOPLE WITH EPILEPSY.


RESEARCH, INNOVATION, AND NEW THERAPIES - BRINGING INNOVATIVE NEW THERAPIES IN A TIMEFRAME THAT MATTERS IS A DRIVING FORCE AND KEY STRATEGIC PRIORITY FOR THE FOUNDATION. THROUGH THE EPILEPSY THERAPY PROJECT, THE FOUNDATION ACCELERATES DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF THE EPILEPSIES, AND ADDRESSES GAPS IN THE RESEARCH AND COMMERCIALIZATION CONTINUUM. OTHER KEY INITIATIVES INCLUDE RESEARCH TO ERADICATE SUDEP, ANALYSIS OF DATA FROM PATIENT REGISTRIES FOR COMMON AND RARE FORMS OF EPILEPSY IN THE HUMAN EPILEPSY PROJECT AND THE RARE EPILEPSY NETWORK, SUPPORT FOR PROMISING AND MERITORIOUS RESEARCH GRANT AND FELLOWSHIP APPLICATIONS.


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Innerworkings
Fundraising Services
$618,737
Deloitte Consulting Llp
Consulting Services
$657,342
Ricoh Usa Inc
It Support Services
$322,204
Cbs Television Studios
Advertising Services
$296,516
Embleema
Consulting Services
$297,000
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$2,999,473
Related organizations$0
Government grants $6,023,630
All other contributions, gifts, grants, and similar amounts not included above$11,346,502
Noncash contributions included in lines 1a–1f $1,007,923
Total Revenue from Contributions, Gifts, Grants & Similar$20,369,605
Total Program Service Revenue$642,816
Investment income $44
Tax Exempt Bond Proceeds $0
Royalties $44
Net Rental Income $0
Net Gain/Loss on Asset Sales $2,003,783
Net Income from Fundraising Events -$1,139,334
Net Income from Gaming Activities $0
Net Income from Sales of Inventory -$105,248
Miscellaneous Revenue$0
Total Revenue $21,897,167

Grants Awarded

Over the last fiscal year, Epilepsy Foundation Of America has awarded $628,773 in support to 7 organizations.

Grant RecipientAmount

Rochester, MN

PURPOSE: SEIZURE GAUGE GRANT; NEW THERAPY COMMERCIAL GRANT

$260,773

EMBLEENA INC

PURPOSE: DEVELOP EPILEPSY DIGITAL EXPERIENCE NAVIGATOR

$200,000

AMERICAN EPILEPSY SOCIETY

Org PageRecipient Profile

Chicago, IL

PURPOSE: RESEARCH GRANT

$50,000

AMERICAN BRAIN FOUNDATION

Org PageRecipient Profile

Minneapolis, MN

PURPOSE: SUSAN B. SPENCER GRANT

$50,000

THE UNIVERSITY OF VIRGINIA

Org PageRecipient Profile

Charlottesville, VA

PURPOSE: NEW THERAPY COMMERCIAL GRANT

$33,000

HEALTHAPPY TECH LLC

PURPOSE: 2022 SHARK TANK WINNER

$25,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 39 grants that Epilepsy Foundation Of America has recieved totaling $1,087,930.

Awarding OrganizationAmount
$244,100
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$138,902
American Endowment Foundation

Hudson, OH

PURPOSE: DISEASE/DISORDER

$126,000
American Endowment Foundation

Hudson, OH

PURPOSE: DISEASE/DISORDER

$105,750
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$64,211
Color Street Foundation Inc

Clifton, NJ

PURPOSE: OPERATION SUPPORT

$50,000
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$4,896,037
Earnings-$546,368
Other Expense-$250
Ending Balance$4,349,919

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