Cure Sanfilippo Foundation

Organization Overview

Cure Sanfilippo Foundation is located in Columbia, SC. The organization was established in 2014. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Cure Sanfilippo Foundation employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Sanfilippo Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Cure Sanfilippo Foundation generated $2.2m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 26.1% each year . All expenses for the organization totaled $2.6m during the year ending 12/2021. While expenses have increased by 33.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Cure Sanfilippo Foundation has awarded 44 individual grants totaling $8,049,266. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO ADVOCATE FOR AND FUND RESEARCH DIRECTED TOWARDS A CURE OR TREATMENT OPTIONS FOR PATIENTS WITH SANFILIPPO SYNDROME

Describe the Organization's Program Activity:

Part 3 - Line 4a

TO ADVOCATE FOR AND FUND RESEARCH DIRECTED TOWARDS A CURE OR TREATMENT OPTIONS FOR PATIENTS WITH SANFILIPPO SYNDROME


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Board, Officers & Key Employees

Name (title)Compensation
Glenn O'neill
Exe Dir/pres
$136,170
Katie Walton
Vice President
$110,012
Cara O'neill
Chief Science
$91,574
Daniel Fraley
Board Chair
$0
Shelby Leonardi
Secretary
$0
Faith Mcangus
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$291,255
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,787,521
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$2,078,776
Total Program Service Revenue$0
Investment income $186,015
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $849
Net Income from Fundraising Events -$37,196
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,229,880

Grants Awarded

Over the last fiscal year, Cure Sanfilippo Foundation has awarded $1,583,407 in support to 10 organizations.

Grant RecipientAmount

REMOTOR THERAPEUTICS

PURPOSE: Transplant MPSIII human neural syst

$466,500

REMOTOR THERAPEUTICS

PURPOSE: Transplant MPSIII human neural syst

$466,500

LUNDQUIST INSTITUTE

Org PageRecipient Profile

Torrance, CA

PURPOSE: Open-label pilot study

$222,463

PHOENIX NEST

PURPOSE: Gene Therapy JLK-247 for regulatory

$125,000

ALBERT EINSTEIN COLLEGE OF ME

Org PageRecipient Profile

Bronx, NY

PURPOSE: Screen plus newborn screening

$100,000

REGENTS OF UC - SAN DIEGO

Org PageRecipient Profile

Oakland, CA

PURPOSE: Blood-based biomarkers for Sanfilip

$64,479
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 21 grants that Cure Sanfilippo Foundation has recieved totaling $138,826.

Awarding OrganizationAmount
Carolyn Smith Foundation

Gallatin, TN

PURPOSE: MEDICAL RESERACH

$50,000
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$20,300
Hazen B Hinman Sr Foundation Inc

Rome, NY

PURPOSE: GENERAL CONTRIBUTION

$20,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$15,609
Pinkerton Foundation

New York, NY

PURPOSE: STAFF DISCRETIONARY

$7,500
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$5,352
View Grant Recipient Profile

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