Childhood Arthritis & Rheumatology Research Alliance
- Assets
- $17.1m
- Revenue
- $10.6m
- Investments
- $0.0
- Employees
- 0
- Location
- Washington, DC
- Founding
- 12/2014
- Data as of
- 12/2022
- EIN
- 46-4152355
Organization Overview
Childhood Arthritis & Rheumatology Research Alliance is located in Washington, DC. The organization was established in 2014. According to its NTEE Classification (G51) the organization is classified as: Arthritis, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Childhood Arthritis & Rheumatology Research Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Childhood Arthritis & Rheumatology Research Alliance generated $10.6m in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 14.8% each year . All expenses for the organization totaled $11.1m during the year ending 12/2022. While expenses have increased by 22.0% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Childhood Arthritis & Rheumatology Research Alliance has awarded 96 individual grants totaling $3,688,805. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.
OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.
ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.
GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Emily Von Scheven MD Mas Past President | OfficerTrustee | 10 | $76,479 |
Christy Sandborg MD Chair-Secretarty | OfficerTrustee | 3 | $0 |
Robert Colbert MD PHD President | OfficerTrustee | 10 | $50,000 |
Carol Wallace MD Director | Trustee | 1 | $0 |
Harry Saal PHD Director | Trustee | 1 | $0 |
Stacy Ardoin MD Vice President | OfficerTrustee | 10 | $68,220 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Duke Clinical Research Institute Carra Registry Management | 12/30/22 | $6,617,845 |
Boston Children's Hospital Informatics Support For Registry | 12/30/22 | $290,124 |
Constrat Services Management Services | 12/30/22 | $289,049 |
Executive Director Inc Management Services | 12/30/22 | $378,403 |
Harvard Medical School Informatics Support For Registry | 12/30/22 | $555,468 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $648,501 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $648,501 |
| Total Program Service Revenue | $9,747,478 |
| Investment income | $165,869 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $10,561,848 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,002,352 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $260,822 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $657,603 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $94,318 |
| Payroll taxes | $47,732 |
| Fees for services: Management | $378,403 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $28,464 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,561,703 |
| Advertising and promotion | $6,580 |
| Office expenses | $5,837 |
| Information technology | $157,854 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,994 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $95,048 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $7,250 |
| Insurance | $33,949 |
| All other expenses | $11,645 |
| Total functional expenses | $11,144,720 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $563,474 |
| Savings and temporary cash investments | $11,191,064 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $5,176,447 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $27,724 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $115,209 |
| Other assets | $0 |
| Total assets | $17,073,918 |
| Accounts payable and accrued expenses | $1,005,549 |
| Grants payable | $1,249,062 |
| Deferred revenue | $1,427,626 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $3,682,237 |
| Net assets without donor restrictions | $13,376,681 |
| Net assets with donor restrictions | $15,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $17,073,918 |
Grants Awarded
Over the last fiscal year, Childhood Arthritis & Rheumatology Research Alliance has awarded $889,369 in support to 15 organizations.
| Grant Recipient | Amount |
|---|---|
DUKE MEDICAL CENTER PURPOSE: LARGE GRANT | $54,575 |
REGENTS OF THE UNIVERSITY OF MINNESOTA PURPOSE: SMALL GRANT | $14,982 |
UNIVERSITY OF UTAH PURPOSE: LARGE GRANT | $49,948 |
BOSTON CHILDREN'S HOSPITAL PURPOSE: HEALTH EQUITY GRANT | $149,830 |
THE CHILDREN'S HOSPITAL OF PHILADELPHIA PURPOSE: LARGE GRANT | $100,000 |
CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER PURPOSE: LADA GRANT | $26,460 |