Vasculitis Foundation
- Assets
- $2.5m
- Revenue
- $1.6m
- Investments
- $0.0
- Employees
- 5
- Location
- Kansas City, MO
- Founding
- 11/1990
- Data as of
- 06/2022
- EIN
- 43-1492959
Organization Overview
Vasculitis Foundation is located in Kansas City, MO. The organization was established in 1990. According to its NTEE Classification (E60) the organization is classified as: Health Support, under the broad grouping of Health Care and related organizations. As of 06/2022, Vasculitis Foundation employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Vasculitis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Vasculitis Foundation generated $1.6m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.6% each year. All expenses for the organization totaled $1.1m during the year ending 06/2022. While expenses have increased by 1.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Vasculitis Foundation has awarded 51 individual grants totaling $1,900,718. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE VASCULITIS FOUNDATION (VF) PROVIDES SUPPORT THROUGH ITS DETAILED WEBSITE WHICH AVERAGES 33,000 VISITS PER MONTH, MONTHLY VF E-NEWSLETTER, PRINTED EDUCATIONAL MATERIALS, PODCASTS,IN-PERSON AND VIRTUAL PATIENT AND FAMILY CONFERENCES, SUPPORT GROUP MEETINGS, AND INTERNATIONAL SYMPOSIA. THE ORGANIZATION RECEIVES 3,500 EMAIL REQUESTS PER YEAR FOR ASSISTANCE WITH 50 PHONE REQUESTS PER MONTH. THE VF WORKS CLOSELY WITH VASCULITIS MEDICAL EXPERTS AND RESEARCHERS AROUND THE WORLD TO PROMOTE THE IMPORTANCE OF EARLY DIAGNOSIS, THE NEED FOR MORE EFFECTIVE TREATMENTS, AND THE CRITICAL NEED FOR RESEARCH. VASCULITIS AWARENESS MONTH, HELD DURING THE MONTH OF MAY, IS AN INTERNATIONAL INITIATIVE TO RAISE AWARENESS AND UNDERSTANDING OF VASCULITIS IN THE GENERAL PUBLIC AND MEDICAL COMMUNITY. VF HAS 2,200 MEMBERS WORLD-WIDE.
THE VASCULITIS FOUNDATION (VF) COLLABORATES WITH RESEARCHERS WORLDWIDE TO FUND RESEARCH INTO DETERMINING THE CAUSE, DEVELOPING MORE EFFECTIVE TREATMENTS, AND DISCOVERING A CURE FOR VASCULITIS. RESEARCH RANGES FROM BASIC SCIENCE TO IMPROVING QUALITY OF LIFE STUDIES. THE VASCULITIS FOUNDATION RESEARCH PROGRAM PROVIDES ONE-YEAR OR TWO-YEAR GRANTS TO SUPPORT PILOT STUDIES IN RESEARCHING ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, DIAGNOSIS, AND TREATMENT/MANAGEMENT OF VASCULITIS. THE VF FELLOWSHIP PROGRAM IS A MENTORED TRAINING PROGRAM OF UP TO TWO YEARS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS AND WISH TO PURSUE A PERIOD OF SPECIALIZED TRAINING WITH AN EMPHASIS ON CLINICAL AND/OR TRANSLATIONAL PATIENT-ORIENTED RESEARCH. THE VF PROVIDES ONE-YEAR OR TWO- YEAR FUNDS TO SUPPORT THE FELLOWSHIPS. DURING 2021-22, THE VF PROVIDED GRANTS TO SIX FOREIGN AND DOMESTIC INSTITUTIONS INCLUDING ONE FELLOWSHIP GRANT AND FIVE RESEARCH GRANTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Joyce A Kullman Executive Di | Officer | 40 | $86,683 |
Brian Goldman VP Of Resour | OfficerTrustee | 4 | $0 |
Sara Baird Amodio President | OfficerTrustee | 4 | $0 |
Suzanne Depaolis Past Preside | OfficerTrustee | 4 | $0 |
Don Nagle Treasurer | OfficerTrustee | 4 | $0 |
Kevin Byram MD Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $2,236 |
| Membership dues | $4,690 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,494,463 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,501,389 |
| Total Program Service Revenue | $35,000 |
| Investment income | $13,888 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $19,006 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,569,283 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $395,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $37,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $103,332 |
| Compensation of current officers, directors, key employees. | $17,336 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $222,370 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $15,674 |
| Payroll taxes | $21,831 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $6,820 |
| Fees for services: Accounting | $33,986 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $6,529 |
| Fees for services: Other | $5,219 |
| Advertising and promotion | $6,455 |
| Office expenses | $62,728 |
| Information technology | $34,583 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $5,153 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $16,173 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $17,894 |
| Insurance | $2,895 |
| All other expenses | $0 |
| Total functional expenses | $1,080,323 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $399,985 |
| Savings and temporary cash investments | $857,347 |
| Pledges and grants receivable | $102,437 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $22,543 |
| Net Land, buildings, and equipment | $10,325 |
| Investments—publicly traded securities | $1,065,294 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,457,931 |
| Accounts payable and accrued expenses | $83 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $28,326 |
| Total liabilities | $28,409 |
| Net assets without donor restrictions | $901,133 |
| Net assets with donor restrictions | $1,528,389 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,457,931 |
Grants Awarded
Over the last fiscal year, Vasculitis Foundation has awarded $395,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Philadelphia, PA PURPOSE: VASCULITIS RESEARCH | $360,000 |
Columbus, OH PURPOSE: VASCULITIS RESEARCH | $22,500 |
Denver, CO PURPOSE: VASCULITIS RESEARCH | $12,500 |
Grants Recieved
Over the last fiscal year, we have identified 17 grants that Vasculitis Foundation has recieved totaling $218,186.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $50,000 |
Haberman Family Foundation Highland Park, IL PURPOSE: CHARITABLE | $50,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $47,200 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $33,333 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $21,304 |
Lukaj Foundation Inc Stamford, CT PURPOSE: SUPPORTING RESEARCH | $8,000 |
Endowment Analysis
| Beg. Balance | $313,242 |
| Earnings | -$36,815 |
| Admin Expense | $1,792 |
| Ending Balance | $274,635 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Ascension Wisconsin Laboratories Inc St Louis, MO | $6,280,554 | $20,897,909 |
Matthew 25 Aids Services Inc Henderson, KY | $4,907,069 | $17,337,927 |
Vine International Inc Knoxville, TN | $268,672 | $13,371,180 |
Kvc Behavioral Healthcare Nebraska Inc Omaha, NE | $2,564,475 | $14,212,520 |
Generations Health Association Inc Mcminnville, TN | $13,336,453 | $14,398,370 |
Community Health Connection Inc Tulsa, OK | $9,079,749 | $13,914,137 |
Wesleylife Johnston, IA | $18,059,987 | $10,517,468 |
Chn Nebraska Omaha, NE | $7,755,122 | $8,559,146 |
Alliancechicago Chicago, IL | $6,331,784 | $6,732,004 |
Kansas Health Information Network Inc Topeka, KS | $2,739,480 | $5,772,753 |
Loyola Medicine Transport Llc Melrose Park, IL | $7,188,448 | $4,376,712 |
Alexian Brothers Medical Group Specialty Care St Louis, MO | $447,414 | $2,857,183 |