Sickle Cell Disease Association Of Illinois
- Assets
- $54.3k
- Revenue
- $251.9k
- Investments
- $0.0
- Employees
- 2
- Location
- Chicago, IL
- Founding
- 12/1971
- Data as of
- 06/2021
- EIN
- 23-7157702
Organization Overview
Sickle Cell Disease Association Of Illinois, operating under the name Illinois, is located in Chicago, IL. The organization was established in 1971. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2021, Illinois employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Illinois is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2021, Illinois generated $251.9k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (7.6%) each year. All expenses for the organization totaled $272.9k during the year ending 06/2021. As we would expect to see with falling revenues, expenses have declined by (7.2%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE SICKLE CELL DISEASE ASSOCIATION OF ILLINOIS IS TO RAISE AWARENESS OF THIS DISEASE AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WHO SUFFER WITH IT. WE DO THIS BY PROVIDING COMMUNITY OUTREACH PROGRAMS SUCH AS NEW BORN SCREENING, GENETIC COUNSELING AND EDUCATION.
Describe the Organization's Program Activity:
Part 3 - Line 4a
A PATIENT GRANT PROGRAM WHICH ASSISTS WITH COUNSELING EDUCATION AND DIRECT GRANTS. PROVIDE VARIOUS FUNCTIONS IE..SUMMER CAMP, XMAS PARTY,BABY SHOWERS, ETC. THAT BRING TOGETHER SICKLE CELL PATIENT FORM AGES 7 TO 13. THE PROGRAMS ARE GEARED TO STRENGTHEN THE CHILDREN EMOTIONALLY AS WELL AS PHYSICALLY.PROVIDED A SCHOLARSHIP PROGRAM COMMITTED TO HELPING SICKLE CELL PATIENTS ATTAIN AN EDUCATION AT THE COLLEGE AND UNIVERSITY LEVEL.PROVIDE NEWBORN SCREEN SUPPORT TO AT RISK FAMILIES.PARTICIPATED IN ILLINOIS SICKLE CELL ACTION NETWORK (ISCAN) PROGRAM ESTABLISHED TO COLLECT CRITIAL INFORMATION ON THOSE WITH SICKLE CELL TO IMPROVE MEDICAL FOLLOW UP.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Dr Francene Bellamy-Moore Director | OfficerTrustee | 0 | $0 |
Dennis Mccullom Treasurer | OfficerTrustee | 0 | $0 |
Darryl Armstrong Chairman Of The Board Of Dire | OfficerTrustee | 0 | $0 |
Talana Hughes Executive Director | Officer | 50 | $0 |
Dr Lewis Hsu Director | Trustee | 0 | $0 |
Dwanye Ross Director | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $28,439 |
| Membership dues | $0 |
| Fundraising events | $21,382 |
| Related organizations | $0 |
| Government grants | $166,924 |
| All other contributions, gifts, grants, and similar amounts not included above | $35,173 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $251,918 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $251,918 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $164,360 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $32,033 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $34,191 |
| Travel | $693 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $862 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $839 |
| All other expenses | $6,903 |
| Total functional expenses | $272,933 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $46,880 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $2,370 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $5,032 |
| Total assets | $54,282 |
| Accounts payable and accrued expenses | $964 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $964 |
| Net assets without donor restrictions | $53,318 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $54,282 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Sickle Cell Disease Association Of Illinois has recieved totaling $15,390.
| Awarding Organization | Amount |
|---|---|
Global Genes Aliso Viejo, CA PURPOSE: 2021 RARE HEALTH EQUITY IMPACT GRANT | $14,955 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $435 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
United Cerebral Palsy Heartland Berkeley, MO | $21,714,583 | $13,839,591 |
Opportunity Of North Central Wisconsin Inc Wausau, WI | $5,456,425 | $7,999,504 |
Cerebral Palsy Inc Green Bay, WI | $17,196,927 | $8,115,992 |
Curefa Foundation Inc Port Washington, WI | $3,628,378 | $2,819,191 |
United Cerebral Palsy Center For Disability Services Joliet, IL | $3,735,483 | $3,150,628 |
National Association Of Neonatal Nurses Chicago, IL | $1,978,150 | $2,104,976 |
Cerebral Palsy Of Southwestern Illinois Fairview Heights, IL | $3,197,425 | $1,946,488 |
Reach Services Inc Terre Haute, IN | $2,911,645 | $1,297,496 |
Great Lakes Hemophilia Foundation Inc Milwaukee, WI | $2,570,807 | $1,284,453 |
Midwest Asian Health Association - Maha Chicago, IL | $1,647,552 | $1,767,369 |
The Lyon Family Foundation Chicago, IL | $4,144,753 | $242,200 |
Magic Foundation Warrenville, IL | $2,737,360 | $1,415,154 |