Childrens Tumor Foundation

Organization Overview

Childrens Tumor Foundation is located in New York, NY. The organization was established in 1984. According to its NTEE Classification (H50) the organization is classified as: Nerve, Muscle & Bone Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Childrens Tumor Foundation employed 43 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Childrens Tumor Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Childrens Tumor Foundation generated $16.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.3% each year. All expenses for the organization totaled $10.4m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Childrens Tumor Foundation has awarded 213 individual grants totaling $23,232,411. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.


PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR.


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Squire Patton Boggs
Lobbying/advocacy
$351,389
Situation Interactive
Marketing Services
$132,949
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$6,703
Membership dues$0
Fundraising events$1,715,102
Related organizations$0
Government grants $1,077,026
All other contributions, gifts, grants, and similar amounts not included above$12,357,737
Noncash contributions included in lines 1a–1f $676,761
Total Revenue from Contributions, Gifts, Grants & Similar$15,156,568
Total Program Service Revenue$1,463,602
Investment income $89,863
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $6,161
Net Income from Fundraising Events -$12,723
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $53,264
Miscellaneous Revenue$0
Total Revenue $16,779,578

Grants Awarded

Over the last fiscal year, Childrens Tumor Foundation has awarded $1,993,051 in support to 16 organizations.

Grant RecipientAmount

Seattle, WA

PURPOSE: RESEARCH - CONTRACT AWARDS

$480,105

CHILDREN'S HOSPITAL OF PHILADELPHIA

Org PageRecipient Profile

Philadelphia, PA

PURPOSE: RESEARCH - OPG & DDI

$279,576

UNIVERSITY OF ALABAMA BIRMINGHAM

Org PageRecipient Profile

Tuscaloosa, AL

PURPOSE: RESEARCH - CONTRACT AWARD

$152,807

INDIANA UNIVERSITY

Org PageRecipient Profile

Bloomington, IN

PURPOSE: RESEARCH - DDI & CONTRACT AWARDS

$135,000

New Haven, CT

PURPOSE: RESEARCH - CONTRACT AWARDS

$126,878

UNIVERSITY OF WISCONSIN-MILWAUKEE

Org PageRecipient Profile

Milwaukee, WI

PURPOSE: RESEARCH - CONTRACT AWARDS

$124,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 4 grants that Childrens Tumor Foundation has recieved totaling $15,200.

Awarding OrganizationAmount
Rjl Charitable Foundation

Douglaston, NY

PURPOSE: GENERAL SUPPORT

$5,000
Organization Name not Listed

PURPOSE: UNRESTRICTED CONTRIBUTIONS

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$5,000
Glen Bruemmer Family Foundation

Dallas, TX

PURPOSE: SERVE CHILDREN

$5,000
Gannett Foundations Inc

Mclean, VA

PURPOSE: CHARITABLE PURPOSE

$200
View Grant Recipient Profile

Endowment Analysis

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