Cystic Fibrosis Foundation

Organization Overview

Cystic Fibrosis Foundation is located in Bethesda, MD. The organization was established in 1957. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Cystic Fibrosis Foundation employed 788 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cystic Fibrosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Cystic Fibrosis Foundation generated $417.2m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 15.9% each year . All expenses for the organization totaled $375.6m during the year ending 12/2021. While expenses have increased by 10.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Cystic Fibrosis Foundation has awarded 3,474 individual grants totaling $1,119,435,136. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990T Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE (CONTINUED ON SCH O) OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.

Describe the Organization's Program Activity:

SEE SCHEDULE O


SEE SCHEDULE O


SEE SCHEDULE O


Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Pioneering Medicine (Cf) Llc
Contracted Research
$12,000,000
Vertex Pharmaceuticals Inc
Contracted Research
$10,000,000
Icagen Inc
Contracted Research
$3,811,979
Microbion Corporation
Contracted Research
$3,395,005
Matinas Biopharma Inc
Contracted Research
$3,176,058
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$362,626
Membership dues$0
Fundraising events$45,841,986
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$40,331,547
Noncash contributions included in lines 1a–1f $4,318,566
Total Revenue from Contributions, Gifts, Grants & Similar$86,536,159
Total Program Service Revenue$1,263,333
Investment income $62,205,751
Tax Exempt Bond Proceeds $0
Royalties $12,463,153
Net Rental Income $0
Net Gain/Loss on Asset Sales $243,956,157
Net Income from Fundraising Events $0
Net Income from Gaming Activities $10,300
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $417,237,551

Grants Awarded

Over the last fiscal year, Cystic Fibrosis Foundation has awarded $163,786,972 in support to 619 organizations.

Grant RecipientAmount

SEATTLE CHILDREN'S HOSPITAL

Org PageRecipient Profile

Seattle, WA

PURPOSE: CLINICAL RESEARCH

$8,041,150

SEATTLE CHILDREN'S HOSPITAL

Org PageRecipient Profile

Seattle, WA

PURPOSE: CLINICAL RESEARCH CENTER

$6,361,303

HEALTHWELL FOUNDATION

Org PageRecipient Profile

Germantown, MD

PURPOSE: PATIENT ASSISTANCE

$4,800,000

UNIVERSITY SYSTEM OF NEW HAMPSHIRE

Org PageRecipient Profile

Concord, NH

PURPOSE: QUALITY IMPROVEMENT

$3,531,889

CHILDREN'S HOSPITAL MEDICAL CENTER

Org PageRecipient Profile

Cincinnati, OH

PURPOSE: CLINICAL CARE RESEARCH

$3,009,161

SEATTLE CHILDREN'S HOSPITAL

Org PageRecipient Profile

Seattle, WA

PURPOSE: CLINICAL RESEARCH STUDY

$2,560,430
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 21 grants that Cystic Fibrosis Foundation has recieved totaling $208,650.

Awarding OrganizationAmount
Carlson Family Foundation

Urbandale, IA

PURPOSE: GENERAL FUND

$60,000
The Pruitt Foundation Inc

Chantilly, VA

PURPOSE: FURTHERANCE OF CHARITABLE PURPOSES

$30,000
Fatherree Foundation

Henrico, VA

PURPOSE: UNRESTRICTED

$30,000
Kee Ring Foundation Inc

Tucson, AZ

PURPOSE: TO PROVIDE SUPPORT FOR CYSTIC FIBROSIS

$25,000
Amfirst Foundation

Birmingham, AL

PURPOSE: GENERAL - NO RESTRICTIONS

$22,675
Cecil A And Mabel Lene Hamman Foundation Inc

Evansville, IN

PURPOSE: GENERAL OPERATING EXPENSE

$10,000
View Grant Recipient Profile

Create an account to unlock the data you need.

or