National Brain Tumor Society Inc
- Assets
- $10.0m
- Revenue
- $8.9m
- Investments
- $0.0
- Employees
- 46
- Location
- Newton, MA
- Founding
- 04/1994
- Data as of
- 12/2020
- EIN
- 04-3068130
Organization Overview
National Brain Tumor Society Inc is located in Newton, MA. The organization was established in 1994. According to its NTEE Classification (G48) the organization is classified as: Brain Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, National Brain Tumor Society Inc employed 46 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Brain Tumor Society Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, National Brain Tumor Society Inc generated $8.9m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 3.5% each year. All expenses for the organization totaled $7.2m during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, National Brain Tumor Society Inc has awarded 106 individual grants totaling $19,926,736. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, AND UNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS, AND ADVOCATE FOR PATIENTS AND CARE PARTNERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM AND HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS.
PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY.
INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS.
RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM AND HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS.
PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY.
INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
David Arons CEO | Officer | 40 | $253,346 |
Lauren Hall Cdo | 40 | $228,403 | |
Kirk Tanner Cso | 40 | $201,152 | |
Kevin Jeans Assistant Cdo | 40 | $181,265 | |
Danielle Leach Chief Of Comm. And Gov. Relations | 40 | $151,951 | |
Steve Gallucci CFO | Officer | 40 | $151,928 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Morgan Lewis & Bockius Llp Legal | 12/30/14 | $115,473 |
Pricewaterhousecoopers Llc Consultant | 12/30/14 | $635,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $4,498,244 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $4,357,464 |
| Noncash contributions included in lines 1a–1f | $18,743 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $8,855,708 |
| Total Program Service Revenue | $0 |
| Investment income | $68,697 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $6,820 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $8,931,225 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $968,121 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $454,247 |
| Compensation of current officers, directors, key employees. | $45,424 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $3,195,590 |
| Pension plan accruals and contributions | $43,690 |
| Other employee benefits | $199,502 |
| Payroll taxes | $287,807 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $58,228 |
| Fees for services: Accounting | $38,381 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $338,214 |
| Advertising and promotion | $88,953 |
| Office expenses | $58,734 |
| Information technology | $305,184 |
| Royalties | $0 |
| Occupancy | $234,920 |
| Travel | $41,445 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $4,787 |
| Insurance | $32,110 |
| All other expenses | $46,433 |
| Total functional expenses | $7,153,205 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $3,009,210 |
| Savings and temporary cash investments | $5,050,537 |
| Pledges and grants receivable | $256,700 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $618,247 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $184,531 |
| Net Land, buildings, and equipment | $9,359 |
| Investments—publicly traded securities | $869,348 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $35,210 |
| Total assets | $10,033,142 |
| Accounts payable and accrued expenses | $253,149 |
| Grants payable | $500,000 |
| Deferred revenue | $25,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $699,882 |
| Other liabilities | $0 |
| Total liabilities | $1,478,031 |
| Net assets without donor restrictions | $3,431,389 |
| Net assets with donor restrictions | $5,123,722 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $10,033,142 |
Grants Awarded
Over the last fiscal year, National Brain Tumor Society Inc has awarded $1,880,000 in support to 28 organizations.
| Grant Recipient | Amount |
|---|---|
ONCOCEUTICS INC PURPOSE: RESEARCH | $200,000 |
ONCOCEUTICS INC PURPOSE: RESEARCH | $200,000 |
Chapel Hill, NC PURPOSE: RESEARCH | $150,000 |
Chapel Hill, NC PURPOSE: RESEARCH | $150,000 |
New Haven, CT PURPOSE: RESEARCH | $125,000 |
New Haven, CT PURPOSE: RESEARCH | $125,000 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that National Brain Tumor Society Inc has recieved totaling $3,908.
| Awarding Organization | Amount |
|---|---|
Scott & Kathryn Happ Foundation Inc Thiensville, WI PURPOSE: GENERAL PURPOSE | $1,854 |
The Bowers Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $1,000 |
The Andover Companies Charitable Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $554 |
Yardeni Family Foundation New York, NY PURPOSE: CHARITABLE | $500 |
Endowment Analysis
| Beg. Balance | $565,448 |
| Ending Balance | $565,448 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Feinstein Health Fund Inc Hauppauge, NY | $26,525,981 | $4,778,709 |
Association For Neurologically Impaired Brain Injured Children Oakland Gardens, NY | $9,382,901 | $10,982,997 |
National Brain Tumor Society Inc Newton, MA | $10,033,142 | $8,931,225 |
Brain Injury Association Of New Hampshire Concord, NH | $2,842,152 | $3,034,466 |
Hudson Valley Mental Health Inc Poughkeepsie, NY | $0 | $1,860,422 |
Dana Alliance For Brain Initiatives Inc New York, NY | $97,683 | $1,932,083 |
United Social & Mental Health Resources Inc Dayville, CT | $15,531,005 | $1,369,798 |
Memorys Garden Inc Albany, NY | $12,027,997 | $1,931,290 |
Childrens Brain Tumor Foundation Inc New York, NY | $1,362,351 | $1,379,183 |
Bridges For Brain Injury Inc Farmington, NY | $208,133 | $1,029,989 |
Person-Centered Services Of Western New York Inc Rochester, NY | $604,843 | $0 |
Brain Injury Alliance Of Connecticut Inc Windsor, CT | $409,737 | $479,951 |